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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby cheerleader » Tue Jan 26, 2010 5:08 pm

here it is, a few minutes in after the local news/weather-

link
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby Johnson » Tue Jan 26, 2010 5:14 pm

cheerleader wrote:here it is, a few minutes in after the local news/weather-

link
cheer


Starts at 6:10

Thank you for the link, Joan.
My name is not really Johnson. MSed up since 1993
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Postby happydance » Tue Jan 26, 2010 7:33 pm

Well spoken Joan. I loved your response to the placebo effect.
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EXCELLENT JOB, JOAN

Postby seanthecaper » Wed Jan 27, 2010 6:36 am

I wanted to tell you how happy I was to both read your rebuttal to Terrence Corcoran's negative article in the National Post and listen to the radio broadcast on 1220AM Winnipeg.

Corcoran incorrectly and without scientific evidence likened the work of Zamboni and the CCSVI theory to junk science and faith healing.

The facts and the truth will override this negativity and bring us closer to a world where MS will be treatable and stoppable.

Zamboni never said CCSVI treatment will cure MS nor did he say that his findings were significant enough to make any conclusions on CCSVI.

He encouraged researchers the world over to try to replicate his findings and draw their own conclusions based on what scientific evidence revealed from their studies, like the Buffalo study currently underway, and the Stanford study and UBC which start soon.

Let science do its job and prove what actual percentage of the population has CCSVI and MS.

The current studies will bear fruit in the form of better and safer treatment options. Naysayers are going to be with us because that is part of human nature, but it is cruel with such a horrible disease as MS to try to quash people's hope.

The hope we have for CCSVI is not based on junk science or faith healing as Oral Roberts performed. What a shameful attack by a supposedly well-respected Canadian news writer.

Sean McNeil
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Postby Dave_NC » Wed Jan 27, 2010 7:45 am

The link doesn't work for me. I am on a mac so that may be the issue. Is there any other source that we can get it? I have a few people that didn't get to hear it live and I wanted to forward them a link.

Awesome job by the way! 8)
Learning and living everyday to the fullest. dx'd Oct. 2008. On the list for Liberation!
http://www.liberatedave.com http://mylifewms.blogspot.com
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Postby NormB » Wed Jan 27, 2010 9:55 am

Ditto as Dave here, I went to Charles Adler site where no podcast was issued for the show. Markus can you verify?

Thanks greatly

Norm
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Postby Mechanicallyinclined » Wed Jan 27, 2010 10:15 am

I've emailed the Charles Addler show asking them when they may have a podcast link established to listen to the interview. When I get a reply , I'll post it here.
Joan, I'll send you a PM on this incase you don't get anything in the meantime to post on CCSVI on facebook.
One step at a time here, but the sense of direction sure looks promising.
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Postby dialed_in » Wed Jan 27, 2010 10:16 am

The link in cheerleader's post worked fine for me. Great interview!

http://www.corusradio.com/Shared/AudioV ... mit=Listen
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Postby Dave_NC » Wed Jan 27, 2010 10:23 am

dialed_in wrote:The link in cheerleader's post worked fine for me. Great interview!

http://www.corusradio.com/Shared/AudioV ... mit=Listen


No dice. :?
Learning and living everyday to the fullest. dx'd Oct. 2008. On the list for Liberation!
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Postby dialed_in » Wed Jan 27, 2010 10:54 am

If Steve Jobs shows this playing on one of those new tablets today I'm gonna be so po'd. LOL

I'm using real player to open it here on my pc. I'm guessing Mac's use some sort of media player that would open it as well? Does real player work on your Mac? Maybe you could d/l it and use it to listen in?
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Radio broadcast

Postby Jason » Wed Jan 27, 2010 11:10 am

Dave try this.

If you want to hear it log on to www.cjob.com go to audio vault

it aired jan 26 at 2pm after local news.

I got that from Charles Adler.
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Postby Reytan » Wed Jan 27, 2010 12:54 pm

Great broadcast. Joan you were brilliant as always. Excellent response to the placebo effect. Very well done Dr. Joan! :)
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Postby NormB » Wed Jan 27, 2010 1:01 pm

Jason, for some reason my window media player can't retrieve the file
as per your address and their instruction.

I wonder if one could save file in mp3 format and post it or send
to nbrisson@webruler.com

Many thanks

Norm
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Link Worked

Postby Dovechick » Wed Jan 27, 2010 1:09 pm

Cheer, the link worked fine for me and it was great to hear your voice on the program.. I'd read your letter on ccsvi in multiple sclerosis so that was not news to me, although I admired the calm and erudite manner in which you replied to the rubbish written by Corcoran.
Thanks for the link, it is now on the ms-ccsvi-uk fan page on facebook.
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
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Postby Dave_NC » Wed Jan 27, 2010 1:09 pm

Same problem.

Can someone put up a file we can download or something?
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