This Is MS Multiple Sclerosis Community: Knowledge & Support

OK Eric, for me will be similar in the sense that I try to go local, also will not rush to a foreign country where s.o. however opened me the door (and I will always be thankful for that!), but now asks for fees I currently cannot/am not prepared to afford in a rush...
I deep-down wanted the doppler as was still skeptical and curious if all this was true (I actually really believed they would not find anything on me...) and in start could not even get access to it in Italy. Only via my Poland doppler could get access to repeat it in Italy, this is so absurd...as no local GP would otherwise have really believed me and provided support to see a specialist. So I did it even twice...

For intervention will now also try via the healthcare system in Italy...and that takes indeed some time and patience! I guess not even only a few months, but now after having the doppler confirmed in Italy and being inserted in the system, will probably have to wait a year until my turn...
And you're right, if one is lucky, they have already even more experience and one might get better treatment.

If we have the chance of access to a local waiting list, there are reasons and lets take the waiting positive... and hope that everywhere the local situation will improve also for others. I'm only sad for those that do not even have the chance of a local waiting list yet... and still need to struggle to get a doppler with a trained specialist.

Steffi

Billmeik, I'm curious, how do first 500 Buffalo results % then look like?

Also at first found strange Simka diagnosed in particular often "pathologic valve" problems in the left/right internal jugulars (in fact the day was there 3 patients had the same diagnosis - and he immediately knew where to check me out when started the doppler)...this made me think a bit in the start, but they confirmed me exactly the the same in Italy calling it "stenosis"by valve malformation. Also saw it on Simka's screen and in Italy now got print-outs where you can see it. So seems the jugular vein blockage either by a floppy badly grown valve or other stenosis is simply a very common MS issue.

I am receiving a fair number of PM's on CCSVI and the status of our centre so to keep everybody up to date on our CCSVI services I have started a twitter broadcast.
Please join...
twitter.com/falsecreekcare

Mark G.

thanks

Thankyou for the updates. Great work and all our best to Dr Simka
and Dr Zamboni. I don't think Dr Zamboni has any idea how
really famous his surname is in our country!

Enjoy.

Oh well, I think he knows as he is travelling around a lot. And I occasionally ensure he gets links to all the important international media, e.g. the TV ones we collected after Buffalo (if he still reads his emails...or is he maybe also partly ignoring his in-box like Simka due to overfload?!)