Billmeik wrote:hold it. CCSVI testing has totally nothing to do with the state of a patient's MS. If they are benign, or having an attack the CCSVI doesn't change.
cheerleader wrote:If we can stick to facts, not supposition. Chronic cerebrospinal venous insufficiency, as defined by Dr. Zamboni, is present at all times. It is not seasonal or variable. It is more obvious in some MS patients, and MAY be more acute during exacerbations.
facts, not guessing-
Blood flow, pressure and volume varies with a host of factors, including environmental, that may influence the severity of iron deposits etc getting on one's nerves.
That the prevailing theory among CCSVI researchers is that the condition is congenital is not 'proof' of anything except that it's their reasonable supposition.
In this study we described the association between MS and the altered modality of venous return determined by extracranial multiple venous strictures. In our controls, venography resembled the normal imaging of extracranial cerebrospinal veins.25 The hampered cerebrospinal venous drainage in patients with MS determines a complex haemodynamic picture defined as CCSVI. It is characterised by multiple substitute circles, with a very high incidence of reflux in both intracranial and extracranial venous segments, and loss of the postural regulation of cerebral venous outflow.
The mechanism underlying this reflux differs from the reflux caused by incompetence of the jugular valve. In the latter case, valvular insufficiency tested with Valsalva can be related to a picture of transient global amnesia.14 In our study, the reflux occurred in any body position without the need to elicit it by a forced movement, suggesting that it is not an expression of valvular incompetence but rather of a stenosing lesion that cannot be crossed with postural or respiratory mechanisms, thereby becoming a long-lasting reverse flow.
Substitute circles are alternative pathways or vicarious venous shunts29 (fig 3) that allow for the piping of blood toward available venous segments outside the CNS. In accordance with the pattern of obstruction, both the intracranial and the intrarachidian veins can also become substitute circles; they permit redirection of the deviated flow, preventing intracranial hypertension. However, over time, they become overloaded because they carry two different flows, their own draining flow and the shunted flow (fig 3).
Cece wrote:goddles wrote:The company that makes the transcranial doppler is Esaote.
We are going to look into this doppler.
Our MRV protocol is an adaption for 3T from Dr Haacke
Hopefully it is the transcranial doppler that will make the difference, if you are able to acquire one.
Edited to say: I still see the results from False Creek as being positive for CCSVI. They found 6 confirmed and 15 possibles. There's no control group to show that, on random healthy people, they'd have found 0, but that's the assumption in place from Zamboni's research.
Greenfields wrote:Cost for going to India? Did they give you a break down?
LR1234 wrote:Torcan It might be cheaper for you to look into having the treatment in Poland. Plus you have peace of mnd that the dr's there have treated dozens of patients and are experienced
TorCan wrote:LR1234 wrote:Torcan It might be cheaper for you to look into having the treatment in Poland. Plus you have peace of mnd that the dr's there have treated dozens of patients and are experienced
Their is a company called surgicaltours.ca and this place is co-ordinating this treatment.
I got a copy of the resumes of the doctors that are going to work on me. I have the piece of mind knowing that these doctors are very qualified to work in this field.
Thank you for your opinion and I am looking forward to posting on this site that the treatment worked on me.
TorCan wrote:I found this website 2 days ago and it is a pleasure to be chatting with people who understand this
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