markus77 wrote:Received an e-mail from Dr. Zamboni this morning-
A Consensus Conference on Venous Malformations - headed by Prof. Byung B Lee from Georgetown - and experts from 47 countries- studied the evidence and unanimously voted in favour of officially including the stenosing lesions found in CCSVI in the new Consensus document and Guidelines. Now published-
http://www.ncbi.nlm.nih.gov/pubmed/2008 ... dinalpos=1
http://www.minervamedica.it/en/journals ... 09N06A0434
This paper can be brought/linked to interventional radiologists and vascular surgeons. CCSVI lesions are classified as a truncular venous malformations - which means that vascular doctors have now classified this disease, CCSVI, as congenital- and preceding MS lesions.
Vascular doctors have agreed. CCSVI comes first.
Dr. Zamboni has been speaking to medical panels around the world. Yesterday was a "4 hour machine gunning of questions" by the Italian, Canadian and US MS Societies in Milan- Dr. Zamboni said he was able to answer all the questions with scientific evidence, and was quite pleased with the meeting's outcome. He'll be in North American soon.
so basically this means if you have MS you have CCSVI. so i think they need to have some more training on the protocol plus are they using the transcranial doppler and MRV?
mangio wrote:It's honest and realistic. The ultrasounds are evaluated by a Radiologist,
not just a Sonographer. The Centre is hosting medical personnel
from Europe very soon and that should assure clients of the quality.
jay123 wrote:The Buffalo study results will also be interesting in that I believe they are going to compare the results of doppler (full Zamboni protocol) vs. MRV results in both MS patients and controls. Hopefully this will produce accurate data whether doppler or mrv is a better tool or are they both accurate used correctly, and does ccsvi appear in all/most MS patients vs. controls.
jay123 wrote:But I think Cheer's point is they do not have the trans-cranial doppler needed to do the complete test. Unfortunately it sounds like this study will not be producing accurate results unless they follow the complete protocol. Hopefully the Europeans (who are they?) will set them straight.
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