This Is MS Multiple Sclerosis Community: Knowledge & Support

Hello all,

In The Netherlands we are preparing a TV news item on CCSVI. Ofcourse recent developments will be covered: such exiting news!

The journalist preparing the item wants to interview a scientist, doctor (vascular or neurologist) who completely agrees with Zamboni's theory , but was not a member of his research team.

As there are many Europeans watching this forum, I directly put this question to them: do you have a valid contact this journalist can approach?

If necessary, please pm me.

Thanks!
We're spreading the word!

Hi there why don't you try Dr. VOGL, Uniklinik Frankfurt, Head of interventionelle Radiologie....at least they are doing the MRT according to Dr. haake....may be worth a shot...

Dr. Schelling from Austria.

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

Dr. Claude Franceschi, Paris France
His paper- the unsolved mystery of MS and venous function
http://jnnp.bmj.com/content/80/4/358.extract

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Inge,

Here is a list of the first wave of medical supporters of CCSVI from all over the world. Dr Francheschi and Dr Schelling would both be good choices.

http://www.thisisms.com/ftopict-8778.html

ozarkcanoer

Hi Inge, Dr. Franz Schelling (Austria), website: www.ms-info.net email: dr.franz.schelling@aon.at , is the best choice I can imagine ever! BTW he speaks fluently English & he’s more than kind!!!
Best
Arne http://www.csvi-ms.net/en

Thanks all!!

This is most helpfull. I will pass this on tomorrow.

Btw: ofcourse I willl mention Dr. Vogl from Frankfurt.
I met him in person yesterday as I was there to have an MRI scan.

They found stenosis in the right Jugular. So I have the CCVSI diagnosis ad well!!

Sorry off my own topic, but I thought it would be nice to mention.

Thanks again all!

Inge

@ Inge... goood news and hope that you get better soon...How long did it take for you to get an appointment in Frankfurt? menaing from sending your docs to professor Vogel and the his first contact with you??
best from munich
COIN

Hi Coin,

Well...I think we arranged a meeting within 2 hours!

Ana gave me contactdetails, I sent an email around 12.30 to Dr, Vogl requesting to be put on the waiting list if he did indeed perform the scans.

Within HALF AN HOUR he replied: "sure we do these scans, when would you like to come?"

After catching my breath and checking calendars with my husband, I sent Dr. Vogl 5 dates as an option.
Within the hour he replied: please come on Tuesday 26th at 14:00.

That was that! I emailed him on thursday 14th January.

Mind you, I did not send in my papers, patient files or anything. I will pay for the scan myself and try to get it back from Insurance (900 euro).
Perhaps things are different when you are a German patient and want to get this back from Insurance. Ana will know I'm sure.

Inge

that sound very cool and unburocratic ( does such a word exists in english??... )...and did you have an appointment with Dr. Meyn as welll?
best COIN

Hi, Yes Dr. Vogl is very unformal (informal?).

But very nice. No I did not have an appointment with Dr. Meyn, because he told me a doppler was not necessary.

Luckily, he found a clear stenosis with me, and a doppler was not necessary indeed. But with another Dutch patient who cam the same day, he did not find anything he classified as CCSVI. She had a slightly narrowed jugular, but he concidered that to be fine. So I think that she would have profited from a doppler.

Mind you, Dr. Vogl is following the dr. Haacke protocol, but using a 1,5T MRI/MRT machine. Some people told me it should be 3T or even 7T. The results are better then. But it might be a good start to get scanned there and then have a doppler and then work from there.

Good luck!
Inge

PS unburocratic sound prefect to me. But hey, I am Dutch, that is very similar to German, so I know what you meant.