lionheart wrote:One thing is clear, there is a lot more to go!
I wish luck to all who have and will go for it!
I guess, I could visit the doctor in my country who's up to this matter and put all questions I have to him...I'll let you know about the answers and results.
weegie1 wrote:I am a newbie so i apologise if this topic has been raised elsewhere.
My father who did not have ms died of a stroke, i had an aunt who did have ms who also died of a stroke.
They were brother and sister.
Since hearing about ccsvi i have wondered about the possible connection between conditions such as stroke and ms.
ccsvi has introduced the vascular link.
It seems that both stroke and ms are in my family history.
Does anyone else have such a connection in their background.
Brightspot wrote:I sent an email to False Creek asking what equipement and protocol they use, and what training their technicians have. This it the response I recieved. Have been reading all I can on this site. Should I be able to tell from this how the False Creek tests vary or conform with the Haake and Zamboni protocols??
Any suggestions on what I should ask them?
All input appreciated, thanks.
Note: I copied and pasted their reply, then edidted out some of the spaces, so as not to take up too much room. I left in their contact info. in case any other readers are interested.
If you decide to go ahead with the procedures, simply fax your requisition to 604-484-8141.
The protocols being used are:
2D Time of Flight]
MRA for Head and Neck
TRICKS (Flow Quantification) Head/Neck
SWAN (Susceptibility Weighted for Iron deposits in the brain)
Please don’t hesitate to contact me should you have any further questions.
@ False Creek Surgical Centre
6th Floor - 555 W. 8th Avenue
Vancouver, BC V5Z 1C6
Father, Grandfather, Aunt, Uncle (father's side)--strokes
myself, brother, sister--ms
cheerleader wrote:Please, bring the protocols to these facilities. If they do not understand what they are looking for, it is not worth the time, money or effort.
No toes are hurt here !!!! Cheer is doing an excellent job. I just got a little stressed out when I saw several posts from people with negative CCSVI tests. I have to keep telling myself over and over again :Buffalo, Buffalo, Buffalo, LOLOLOL. And I guess we also need to comfort those who do report negative tests... it must be shattering after having so much hope.
Just because some have had success following this route, doesn't mean everyone else will. There doesn't seem to be any wiggle room now, if the scans are negative, well it's the training, the wrong protocols, bad attitude or whatever, but the fact remains, there WERE people who walked away from Stanford and other places, with all the proper testing and 100% negative for CCSVI. I guarantee you Buffalo is not going to be putting out "100% positive numbers". That's a fairy tale land of make believe that does our fellow MSers a serious disservice.
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