Georgetown University going to research CCSVI !!!!!!!!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Georgetown University going to research CCSVI !!!!!!!!

Postby ozarkcanoer » Wed Jan 27, 2010 5:44 pm

From CTV : two CCSVI news stories all wrapped up in one !!!!!!

http://www.ctv.ca/servlet/ArticleNews/story/CTVNews/20100127/ms_treatment_100127/20100127?hub=Health

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Postby mshusband » Wed Jan 27, 2010 6:12 pm

WOW WOW WOW

GREAT NEWS!

AND it's close to me. How do we get in touch with Georgetown about this? I think the best part is they said they'd be treating people they find to have this condition (not like Buffalo)!!!

FANTASTIC!!!

Again, I'm so new to this ... but the reason they are doing this is because people like all of you who are advocates and push your doctors.

There really must be something to CCSVI that it is getting so much attention so quickly. If MDs at Georgetown believe, it won't be long before it's at Hopkins, Harvard, etc. Just wait and see ...
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Postby markus77 » Wed Jan 27, 2010 6:15 pm

OMG Italian MS Society will allocate up to 4.5 million and accepting research proposals until March 8 and the MS society of Canada will only allocate up to something like a measly 200,000 for trials and accept proposals till something like June i believe. this is unbelievable. this just confirms who really is in controls of the societys.

on a more positive note it looks like the word is getting out there about CCSVI. Its the real deal my friends. there is obviously something to it if so many trials are popping up everywhere.
Last edited by markus77 on Wed Jan 27, 2010 6:22 pm, edited 1 time in total.
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Postby ozarkcanoer » Wed Jan 27, 2010 6:22 pm

mshusband,

Just a suggestion, if you are near Georgetown call Dr Laredo's office and see if you can get into their trials !!!!

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Postby Cece » Wed Jan 27, 2010 7:03 pm

Great find, ozarkcanoer!!!

I can't imagine what it must have been like to be here on this forum a year ago and see CCSVI pick up speed and get to where it is today. There have been so many big developments.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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Postby TFau » Wed Jan 27, 2010 7:31 pm

Wow, I'm shocked but thrilled that the Italian MS Society is donating so much! I thought that I had heard the the Italian Minister of Health's wife was supporting big pharma there, or something indicating that they were not interested in CCSVI continuing.

This week has been so uplifting for CCSVI. I hope that the Buffalo results knock a ball out of the park!
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Postby walcat » Wed Jan 27, 2010 10:53 pm

That is SO AWESOME! I'm feeling left out here in Idaho. All I'm hearing from doctors are I'm "wishful thinking" or "because I live in Idaho I won't get help". Maybe as more studies pop up, I can find some help closer to home.
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f***ing amazing

Postby coin » Thu Jan 28, 2010 1:39 am

I cannot believe this is now all hapening...so coool......am so extremly excited and my Husband as well...and we will kick asses here in Germany ( not prof Vogel and prof Reichenbach obviously) as to ensure that they understand and accept what the medical community in some parts of the world are already understanding !!! ( pardon my french) And if Georgetown "believes" in this...jesus...is that not evidence and proof enough that it is worth looking into this theory!!

best from bavaria







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Postby thornyrose76 » Thu Jan 28, 2010 8:00 am

Right on Italian MS Society and Georgetown. All of this is beginning to ease my very worried and tired mind! :o :( :)
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Postby mshusband » Thu Jan 28, 2010 11:05 am

I just called Dr. Laredo's Georgetown office ... the person who answered the phones (obviously not a doctor) was very nice, amd said she had heard about the study (probably because hundreds of people have called today), but didn't have any more information at this time.

Anyway ... she took our name and information, and said she'd "pass it along" and the proper people would get back to us.

I hope that's not just blowing me off - I didn't get the feeling it was ... but obviously we're very excited to have this opportunity within driving distance of our home.

Just in case anyone was wondering ...
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Postby ozarkcanoer » Thu Jan 28, 2010 11:22 am

mshusband, That is great that you are on a list for Georgetown !!! That is the first step. I hope you get "the call" !!! It's interesting that 100s of people have already called. Good news travels quickly !!!

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Postby onesickrace » Thu Jan 28, 2010 12:15 pm

mshusband, i got the same reply from rebecca when i called this morning when they opened at 830am. she also said she would get back to me in a few minutes. i patiently waited until 2pm and called her back. she remembered my name from this morning and sorta laughed and mentioned that i wouldnt believe the amount of calls they had received. all i could say was "i can only imagine" she was very friendly for sure, i just dont think they were ready for the onslaught of calls they received. fingers crossed for sure. keep us posted when you hear back please as will i.
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Postby dlb » Thu Jan 28, 2010 12:29 pm

Quoted from the CTV news release:

In another development, an international group of doctors who specialize in disorders of the veins has issued a consensus document on the diagnosis and treatment of these problems, including CCSVI. The International uni0n of Phlebology officially classified CCSVI as a congenital vascular malformation, outlining official guidelines for diagnosis and treatment.

Dr. James Laredo, a vascular surgeon at Georgetown University Hospital, and one of the authors of the statement, said the members of the group voted unanimously in favour of including CCSVI as a venous malformation. (end quote)



This is the portion of the announcement that I find very hopeful> CCSVI is voted (unanimously) as a venous malformation. The procedures will be covered once they start happening....
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Postby mshusband » Fri Jan 29, 2010 10:09 am

I haven't heard anything back from the girl I talked to yet - I guess it could be a month since that's when they said in the article that screenings would begin.
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