This Is MS Multiple Sclerosis Community: Knowledge & Support

... and apparently going to Biogen. I guess there's different ways to interpret this news.


http://www.buffalonews.com/258/story/936036.html

maybe to calm the shareholders at Biogen.



Mr. Success

Well its either bad news for the CCSVI trial or really good news for CCSVI maybe he does not see a future for himself in buffalo because CCSVI is real and maybe neurological services will not be in such high demand

Is the buffalo neuroimaging center a separate entity? or is it closely related with the neurological institute?

I'm guessing Biogen sees the writing on the wall, and wanted to get someone into their fold who was CCSVI savvy?

Interesting. I mentioned earlier that he is on the bd of directors of the NMSS and I wondered how that would fit in with the CCSVI study and how his relationship with Dr. Guttman would be.
It's interesting that Dr. Jacob's name came up to in the article. Apparently there was always an intense rivalry there, he probably didn't like the name change from Baird MS Center to Jacobs a few years ago.
I believe Dr. Guttman was Dr. Jacob's hand picked successor as he was suffering from cancer.

Also note this thread, which discusses Biogen's new MS research:

http://www.thisisms.com/ftopict-9978.html

I do not think any of this is coincidental-
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

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Bob,

Even the Biogen telephone solicitors for Tysabri know about CCSVI.

Today they reached out to me. I stopped taking Ty in Nov. I decided to play with him since I knew all of the past week's news. When they asked what I was going to take next, I said I had ccsvi and had been liberated and wasn't taking any more MS drugs.

At first he sounded a little miffed so I asked if he knew what CCSVI was. He said of course and proceeded to hang up on me. I have a feeling they soon will be coaching their solicitors on how to handle objections.

Wow, bestadmom, Tysabri actually solicits patients ?? Like a sales call. OMG ! Isn't that a little... ummm unethical ?

ozarkcanoer

I got the same call this week - told them the same thing! Though I don't believe it, I do think we need to stay on some treatment until everything os 'out' of our system.

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Jay123,

My neuro had me stop the Ty because it wasn't working for a year and I was at 19 infusions. I've been on Copaxone, Avonex, Cytoxan, Methotrexate and Ty. I've been a failure on them all.

I was at a msactive source talk in Dec in Buffalo with Dr.Munsch being the speaker. I went to see if he would bring up ccsvi. At the end the have a question @A session. I wrote on my 3x5 card " what is your opinion of the CCSVI theory?". To the person that I came with I said doubt the drug rep will read my question. She did but with the statement before she read it "I'm not sure what this is but ......". Dr. Munsch turned to the audience and asked who new about this . In a room of at least 150 me and one jother person raised there hand. He did go on to explain the theory and said it needed more research. I don't remember him mentioning that Jacobs was involved. What he did say that stuck him my head was that Dr Zamboni had a wealthy friends that payed for the research. I went up to him afterward to tell him that Dr Z wife had MS. i have to say he is a very personable guy and in the 4 years I have been back in Buffalo and attended any drug sponsered talk he was always willing to stay for as long as it took to answer the audience questions. Anybody that I knwo that has him as a Dr has a lot of respect for him. I tried to get in to see him when I moved back to Buffalo but he had broken his leg and I found another Dr. I was at the clinic on Tues for a study on cognition/brain atrophy which they used my MRI from the vein/iron study. For this study I was questioned by a U of Buffalo doctorial student and then I got to see Dr Wein-Gutt for the physical to check my EDSS. She also is very personable and even though I was just in for a quick check we did discuss the ccsvi. I got a felling that they are setting up Dr's for some angios which I assume will be under research protical. She said they are not doing stents . She went into that the angios would be done slow not quick like they have been and some other technical stuff. My husband work for a medical company that makes stents. He dropped off info in Oct obout the CCSVI but he never heard back from anybody. You can lead a horse to water but......

Do you know what he was implying? For example, that the research is biased? Or that is the only way to get it done because Pharma won't pay? Kind of intriguing.

And, from many of our perspectives, what a great use of money!

_________________
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri