We Must Send a Message to Stanford: Support CCSVI Trial

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby cheerleader » Fri Jan 29, 2010 3:30 pm

Just received a nice letter from the good doctor...staff is now hired to ready the animal trial and to get the human study underway. The MS Innovations Fund is up and running-
Stanford University MS Innovations Fund
Please send donations to:
Stanford MS Innovations Fund
Cardiovascular Research Center, 300 Pasteur Drive,
Stanford, CA 94305-5407

Dr. Dake will be presenting his research at the Hamilton conference, as well. He could use our support to make sure the university stands behind his work.
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
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Stanford Trials

Postby Opera » Fri Jan 29, 2010 4:46 pm

I have drafted the e-mails and letters. Will be sending them out today.

Just a suggestion to all those who underwent the procedure at Stanford. It would be useful if you can mention in your e-mails/ letters all the health benefits you have experienced after undergoing treatment by Dr Dake. This will further support the case for resumption of trials at Stanford.

I am sure most of you would have done it anyway.
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Postby Loobie » Sat Jan 30, 2010 8:30 am

This is very important I believe as I think if we don't keep the pressure on, stenting at Stanford may eventually be quashed by the critics. Get 'em mailed!
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Postby SammyJo » Sat Jan 30, 2010 2:02 pm

Billmeik wrote:

anybody know the backstory here? Are the animal studies still going on?

The problems have been discussed many times here, and are not limited to Stanford. Some in the medical profession are resisting trials to explore the CCSVI theory, because it goes against long held beliefs about the origins of MS. But rather than casting blame, I feel we should commend them for their leadership so far, and encourage them to continue in the lead by completing the trial.
Last edited by SammyJo on Sat Jan 30, 2010 3:50 pm, edited 1 time in total.
RRMS '95 SPMS '02 | CCSVI 10/09 | Adult stem cells 2012 | http://www.patientsforstemcells.org/
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Postby walcat » Sat Jan 30, 2010 3:44 pm

Thank you for this information! I didn't see it until today and I missed my date of mailing, so I'll send my letters on Thursday 2/5.
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Postby Needled » Sun Jan 31, 2010 8:03 am

The Stanford trial is so important for everyone on this board. Please send your letters and emails, even if you've missed the suggested mailing date. Thanks Sammy Jo for bringing it to our attention and doing all the legwork to make it so much easier for all of us.
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Postby Edser » Tue Feb 02, 2010 12:31 am

Good Morning TiMS,
Thank's for the information SammyJo.
Slainte Mo Chara
Edser & Anna
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
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Postby pegmegrund » Tue Feb 02, 2010 7:41 am

I sent the emails today.

Thank you, Sammy Jo, for gathering the names and email addresses. This helped a lot!
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Support for Stanford

Postby Bobbi » Tue Feb 02, 2010 5:24 pm

I just sent out my emails, too.
I know this can make a difference.
Thanks to all who supported this initiative.
Thanks to Sammy-Jo for putting this campaign together.
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Stanford Emails

Postby mrsilkykat » Tue Feb 02, 2010 10:20 pm

OK, Whew, got 'em all out.
Thanks for doing this, Sammy Jo.
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Postby CureIous » Wed Feb 03, 2010 12:02 am

my mail carrier had to file a workman's comp claim after lugging my "to go" box into the truck.... ;)
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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mail to endorse Dr. Dake

Postby William57 » Wed Feb 03, 2010 7:55 am

and also a endorsement email from the Netherlands is sent to the persons of the Stanford University listed in post #1

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Postby thisisalex » Wed Feb 03, 2010 8:46 am

Hungary is on board also :)
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Postby Bobbi » Wed Feb 03, 2010 10:43 am

I wonder how many emails were sent ???
I did receive a very nice personal thank you from one of the recipients.
Keep it going,
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Please add Dr Dake as CC

Postby SammyJo » Tue Feb 09, 2010 5:50 pm

Please add Dr Dake as CC on the letter/emails you send to Stanford administrators. I forgot this on my first post. If you have already sent letters, please email him a copy.

Dr. Michael Dake
Chief of Interventional Radiology
Stanford University School Of Medicine
Falk Cardiovascular Research Center, 2nd Floor
300 Pastuer Drive
Stanford, California 94305

RRMS '95 SPMS '02 | CCSVI 10/09 | Adult stem cells 2012 | http://www.patientsforstemcells.org/
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