This Is MS Multiple Sclerosis Community: Knowledge & Support

Could it be that the neck is dense and tightly packed with muscle, jugulars, carotids, throat, etc. and that contributes to the CT/MRV/ultrasounds being unreliable? The more I've read about CCSVI, the more I'm impressed with necks....

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"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

Dear Dr. Sciafani,

Thank you so much !

Dr. Sclafani,

thank you and i got to say : what you told us just makes sense.

God bless and please, please help as many patients as possible.

I am so grateful for your work and willingness to treat us. You Rock!!

Hi, All! I hope it's not inappropriate for me to sign in too...along with my boss, Dr. Sclafani...but in reading back a few pages I saw that a few people were concerned about the social security number and mother's maiden name I ask for in the form I send out about CCSVI testing and treatment (starting 3/10/10 and discussed among Vivianne766, FlashHack, Cece and jr5646). I can understand your feelings and wondered myself whether I should leave it in the form but did in the end, since no one I spoke to when I used to get all this information on the phone hesitated for a moment. But I understand that an emailed form can feel a little different. So though most seem okay with supplying this information I respect the feelings of anyone who wants to hold off on supplying social security number and mother's maiden name until actually scheduled, when it's necessary for financial clearance, etc. But I do draw the line at having to look for it inside your jugular veins !

Very best wishes,

-- Holly

Oh well, it was worth a shot.

Dr. Sclafani continues answering questions here:

http://www.thisisms.com/ftopict-10680.html

~HP

Thanks for posting that, HP.

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"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

Hi. I just spoke to Debbie Hill in Dr. Mehta's office. I asked how the study approval was coming along. She said it is in the final stages and should be out to us in a couple of weeks.

She also said they are only going to do angioplasty on people with 50% or greater stenosis.

Does anyone have more information on cost?

Thanks for asking ikulo... I have been wondering the same, since the email I got from their office.... is this a study or plans for providing a procedure service & what is the cost?? Hopefully someone can answer!

ik and dlb,

I do know that they will be asking for all of my insurance info. One of the researchers did tell me that this study is not being funded. (U gotta pay). I do not know what the costs will be yet.

chin up

kc

I will say our insurance paid for the cost, save our deductible which turned out to be nearly $800.....

Hi Kacey: Thanks for your post - do you mind letting us know how you went about getting your insurance company to pay for your testing and treatment - did you just submit a regular insurance claim? Are you from Canada?

I have signed up with Dr Mehta but I haven't received any followup e-mail from Dr Mehta neither received any contact from Dr. Sclafani .

would you please let me know if there is any other action that I need to take.

Thanks,
brave