Dr. Mehta in Albany, NY - Thank you, Kacey!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Kacey » Tue Feb 02, 2010 5:00 pm

Michael and the kids are tearing the house down right now. He is running, picking them up, throwing them on the couch. Been going on for 20 minutes straight. AND he's enjoying it. This does not happen in my house!
They (and he) are SCREAMING and laughing and he's not yelling at them to be quiet (noise was almost painful to him) . I am trying not to cry...

:D
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Postby Cece » Tue Feb 02, 2010 5:23 pm

That sounds wonderful, Kacey. Being on the other side (sometimes pained by my children's noise) I can relate too well.

edited to add: you know, I'll call Mehta tomorrow and get on the list if possible. I'd rather do this close but I also want to get it done, period, and hey, it's closer than Poland.... :)
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kacey thanks

Postby jak7ham9 » Tue Feb 02, 2010 5:48 pm

hi icalled dr mehta and now am on the list to do trials in february they were quite nice Said they have gotten a ton of people calling. Thanks I want to jump around with my kids!! Barbara
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Postby kc » Tue Feb 02, 2010 6:01 pm

Wanted to clear up my earlier post where I was crying because Mehta
s office called to cancel my 2/4 and left it on my answering machine.

I called the next morning and was put thru to his researcher who stated that they were taking February to get the protocol they were going to do straight. I was elated.

I think maybe starting out with balloon tx is the way to go for me. If I need stents in the future so be it.

I noticed that when I am having a bad day my right eye lid kinda droops. I initially chaulked it up to aging, but there is a distinct diff between my righ and left eyes. I took a picture of it but cannot seem to post it.

Will leave word on here after my appt. (They said sometime in March)

kc :D :) :D :) :D
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Postby Kacey » Tue Feb 02, 2010 6:21 pm

Such wonderful things are coming this way! You know, I laughed at my sister when she(years ago) said that Sylvia Brown (psychic who goes on Montel) said there would be a breakthrough for MS in 2010!
Jeez, maybe she really IS psychic! LOL!!
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Postby MaggieMae » Wed Feb 03, 2010 7:37 am

I've been away from the board recently and maybe I missed something even though I've been trying to catch up, but I thought that Dr. Mehta was just doing testing. Is he also doing the procedure if stenosis is found?

Sorry - I searched Kacey's profile and found that her husband did have procedure by Dr. Mehta. Wonderful.
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Postby HappyPoet » Wed Feb 03, 2010 12:55 pm

Kacey, you're an *angel* to so many... I hope it's a wonderful feeling for you!

I just cannot let myself go back on Tysabri or Novantrone without knowing if I have venous stenosis or not. And if I do have stenosis . . .

What if some, or all, of my stenosis is treatable?
What if some, or all, of my symptoms can remit partially, or fully?
What if some, or all, of my quickly advancing progression can be halted before it's too late?

I just have to take this chance, a simple angio of a chance. Yes, Kacey, you are my angel, for finding Dr. Mehta. As you know, I started this thread as a special way to thank you -- but just you wait until after I have the testing/treatment!

Luv, HappyPoet
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Postby Cece » Wed Feb 03, 2010 1:07 pm

kc wrote:I called the next morning and was put thru to his researcher who stated that they were taking February to get the protocol they were going to do straight.


I actually found this encouraging, that they are putting in a month's worth of effort to get it right.

I called this morning and have left my contact info with his secretary, Megan.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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Postby MS_mama » Wed Feb 03, 2010 3:04 pm

HappyPoet wrote:Kacey, you're an *angel* to so many... I hope it's a wonderful feeling for you!



yes to that! Thanks from me too, Kacey!

I'm a praying gal so I will be praying real hard that this study goes through. I already was signed up but got canceled from Dr. Haacke so I am really hoping there are no setbacks with dr. Mehta's work.
dx RRMS Jun. 2009...on Copaxone and LDN and waiting for my turn to be "liberated"<br />
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Postby zinamaria » Wed Feb 03, 2010 3:19 pm

Hello,

This doctor sounds wonderful....is there an email for him? Does accept emails or only ph calls? And is he still accepting people for his study?

thanks,
zina
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Postby annad » Wed Feb 03, 2010 3:51 pm

Re: Dr. Mehta

I called and was given an e-mail address

wilcoxm@albanyvascular.com

Write: MS Research Study in the subject line
Last edited by annad on Thu Feb 04, 2010 9:57 am, edited 1 time in total.
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Postby Cece » Wed Feb 03, 2010 4:01 pm

Her response says that I have been added to the list of patients that they will contact in March to begin evaluations. Not sure how long that list is but it seems like a very positive response. This was all done today.

I am feeling hopeful.
Last edited by Cece on Wed Feb 03, 2010 6:40 pm, edited 2 times in total.
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Postby annad » Wed Feb 03, 2010 4:07 pm

That's great! Congrats!
When did you e-mail her? I might resend an e-mail since I haven't heard.
:)
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Postby Cece » Wed Feb 03, 2010 4:10 pm

kc wrote:I noticed that when I am having a bad day my right eye lid kinda droops. I initially chaulked it up to aging, but there is a distinct diff between my righ and left eyes.


No idea what it is, but I have that too. I brought a picture to my doctor in the beginning...yes, it was vanity that led me to the doctor and when I mentioned that it fit in with all my right side weird differences (weak foot, pain in my hip, vision issues)...she got real interested, ordered an MRI, and next thing I knew I was at a neurologist getting an m.s. diagnosis.

Anyway, if the lid droops enough that it blocks a certain percentage of your pupil, then it qualifies for eyelid surgery covered by insurance. Mine's not bad enough, but it still bugs my vanity. :)
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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Postby Cece » Wed Feb 03, 2010 4:12 pm

annad wrote:That's great! Congrats!
When did you e-mail her? I might resend an e-mail since I haven't heard.
:)


Let's see...I emailed at 2 p.m. and heard back at 2:43 p.m.

I think you missed the m in her email address!
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