Just received this email from Albany:
Thank you for your request to be seen by our office for evaluation of CCSVI. We are writing to inform you that we are currently waiting for Institutional Review Board approval to begin our “Liberation Study” with The Vascular Group PLLC. Once we obtain that approval, we plan to move forward with scheduling patients. At this time we are unable to provide you with any additional information.
We understand that many patients are traveling from long distances, and we will do our best to make arrangements so as to accommodate your travel requirements.
When our approval is in place, we will provide additional information. We look forward to having you as a patient, and are dedicated to raising awareness and understanding about Chronic Cerebrospinal Venous Insufficiency, or CCSVI. Please feel free to contact our office any time with questions or concerns."
Looks like they're still trying to work out the kinks... Ugh!!
RRMS - dx 06/09
LDN - 4.5mg 06/09-present
Copaxone - 06/10-09/10
Avonex - 06/12-06/12
Late Stage Lyme - 12/10
Too many meds to list!!
Remember, today is the tomorrow you worried about yesterday..