Coimbra Protocol Summary

A forum to discuss the Coimbra Protocol which uses high-dose vitamin D3 to treat multiple sclerosis.

Re: Coimbra’s Protocol Summary

Postby AntonioBR » Mon Mar 14, 2016 6:11 am

For those that miss dairy foods.

Rice Milk and Sweet Potato Cheese are some substitutes.


Note: Industrialized Vegan food often has calcium added to it. So the natural/organic version is better recommended.



Homemade Rice Milk:

Recipe: http://dontwastethecrumbs.com/2013/09/dairy-alternative-homemade-rice-milk-2/

Image





Sweet Potato Cheese:

Image
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Re: Coimbra’s Protocol Summary

Postby TeeBenergy » Wed Mar 16, 2016 11:02 am

Hi folks,

Here's a translated version of the Restricted Foods List that was shared is a previous post.

hth,
Taps

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DX'd Early 2009
Dieted, CCSVI'd (twice), Stented, Currently Vitamin D'ing...
More sig coming soon (listing symptoms and stuff)...
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Re: Coimbra’s Protocol Summary

Postby AntonioBR » Fri Mar 18, 2016 3:47 pm

Excellent post Taps!

Thank you!

I'm going to add this Restricted Foods List in the first post (Coimbra Summary).
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Re: Coimbra’s Protocol Summary

Postby HUD45 » Wed Mar 23, 2016 6:31 am

Looking for information on increasing or decreasing Vitamin D dose to proper levels after appropriate blood tests. Say pt. was 85 Kg and started with 85,000 iu of D. for two months and then after analysis of pth and other tests, more D is needed to further decrease pth level to ideal levels at lowest end of normal range. How is the increase in D dosage calculated?

Any thoughts appreciated...HUD
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Re: Coimbra’s Protocol Summary

Postby AntonioBR » Thu Mar 24, 2016 5:44 am

HUD45 wrote:Looking for information on increasing or decreasing Vitamin D dose to proper levels after appropriate blood tests. Say pt. was 85 Kg and started with 85,000 iu of D. for two months and then after analysis of pth and other tests, more D is needed to further decrease pth level to ideal levels at lowest end of normal range. How is the increase in D dosage calculated?

Any thoughts appreciated...HUD



Hi HUD,

It depends on what is your PTH level now. And how much it has decreased since the beginning of the protocol.

Generally, they increase vitamin D intake with 20,000 or 30,000 IU.

However, when the patient has a high resistance and he/she is at the beginning of the treatment more can be added.

My brother started with 130,000 IU after two months a relapse happened and he increased it to 180,000 IU. But his PTH was in 85pg/mL showing a high resistance to vitamin D3. So, the doctor increased his dose in 50,000IU.
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Re: Coimbra’s Protocol Summary

Postby HUD45 » Thu Mar 24, 2016 5:58 am

Thanks Antonio... The research I have done says increase by approximately 20,000 iu in most cases. I was wondering how some patients get to that dosage in the 100,000iu to 200,000iu level. Must be based on resistance as indicated on serum vit. D levels? Any other factors?

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Re: Coimbra’s Protocol Summary

Postby AntonioBR » Thu Mar 24, 2016 6:26 am

HUD45 wrote:Thanks Antonio... The research I have done says increase by approximately 20,000 iu in most cases. I was wondering how some patients get to that dosage in the 100,000iu to 200,000iu level. Must be based on resistance as indicated on serum vit. D levels? Any other factors?

HUD



Yes, patients that have high resistance sometimes take almost one year (or more) to adjust their individual dose by adjusting PTH ranges. It takes time.

Remembering that resistance is measured by Parathyroid Hormone (PTH) not with the vitamin D3 serum levels alone.

Another relevant factor to increase the dose is if a relapse occurs (as happened with my brother).

I forget to mention that my brother's doctor increased his dose again. Now he is taking 250,000 IU (march/2016 update) because his PTH wasn't dropping to the minimum rate. His PTH need to drop to 12pg/mL.

When he was taking 180,000 IU his PTH stuck on 22pg/mL.

People with high resistance generally increase his dose by 50,000UI.

Only in september-2016, he will know how this new dose affected his PTH.
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Re: Coimbra’s Protocol Summary

Postby Lionel » Mon Apr 25, 2016 1:19 pm

the before--after photos on the first post are very encouraging...

I didn't know that Coimbra could be used for Psoriasis and Vitiligo.
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Re: Coimbra’s Protocol Summary

Postby AntonioBR » Thu May 19, 2016 3:57 am

I've added more information on the first post.
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Re: Coimbra’s Protocol Summary

Postby CureOrBust » Thu May 19, 2016 5:16 am

Lionel wrote:I didn't know that Coimbra could be used for Psoriasis and Vitiligo.
Unless I am mistaken, I think these are the only conditions that have actually been published. MS Treatment has not been published in a peer reviewed medical journal. Results of Coimbra protocol for MS treatment are anecdotal.
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Re: Coimbra’s Protocol Summary

Postby AntonioBR » Fri May 20, 2016 8:32 am

-
-

I posted a recent interview with Dr Coimbra by Dr Francisco Calvo in English:
http://www.thisisms.com/forum/coimbra-high-dose-vitamin-d-protocol-f57/topic27307.html#p241870
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Re: Coimbra’s Protocol Summary

Postby TeresaL » Fri May 20, 2016 9:16 am

There are many good MS success stories from people using the High dose D on FB. Copaxone gave me constant bladder infections, joint pain, almost fatal kidney stone ( 8 days in ICU) Bladder infections would trigger many MS attacks. I still progressed using copaxone. Dr Ciscero's protocol doesn't have side effects like he other MS drugs
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Re: Coimbra’s Protocol Summary

Postby AntonioBR » Sat May 21, 2016 6:13 am

TeresaL wrote:There are many good MS success stories from people using the High dose D on FB. Copaxone gave me constant bladder infections, joint pain, almost fatal kidney stone ( 8 days in ICU) Bladder infections would trigger many MS attacks. I still progressed using copaxone. Dr Ciscero's protocol doesn't have side effects like he other MS drugs



Hi Teresa,

Thank you for sharing your experience.

Are you still taking Copaxone?

About your doctor from Coimbra Protocol, has he said to you that Copaxone slow down the good effects of vitamin D3?
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Re: Coimbra’s Protocol Summary

Postby TeresaL » Sat May 21, 2016 9:57 am

Not taking copaxone anymore. I have local doc who is monitors my. blood test every 2 mos. not sure if copaxone would slow down vit D progress, I just couldn't handle the side effects any longer. From the testimonies on FB vit D group. All soon stop the conventional MS drugs because if side effects or that they are not working well keeping symptoms in remission.
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Re: Coimbra’s Protocol Summary

Postby vilnietis » Sat Aug 13, 2016 11:46 pm

TeresaL, many people, who takes high vitamin D doses, stops taking drugs at some point.
I realized today that 1,5 years past already after my diagnosis. Time goes by fast :) Last half of the year feeling really good, I don't have any symptoms at all. I'm curious to contact my neurologist to perform some tests, which shall confirm I have MS or .. ?. Evoked potentials comes to my mind. Have anyone here had a chance to repeat the same tests, which confirms MS diagnosis (apart MRIs)? What were the results compared to the first ones?
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