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PostPosted: Tue May 25, 2010 5:42 pm 
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Joined: Tue Apr 13, 2010 3:00 pm
Posts: 33
Location: Florida
I started on Copax 20 days ago today. It's going well.

Last week, I got a call from Shared Solutions and they offer to sign me up for a discount program that pays my copay. "Great, send me the sign up form" I said.

Yesterday I received the form plus another form. In order to get the discount, I must enroll in Shared Solutions. By signing the enrollment paper, I agree to let them access and use my Personal Health Information (PHI) from my doctor and pharmacy for "insurance benefit investigation, produscts, supplies, programs and to conduct market analysis. I must also agree to "once this PHI is disclosed to TEVA, it is no longer protected under federal privacy laws and may be re-disclosed."

So for the amount of my monthly copay, I am being asked to give away my health privacy. What say you?


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PostPosted: Tue May 25, 2010 5:57 pm 
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Joined: Sat Aug 15, 2009 3:00 pm
Posts: 75
I guess it depends on two things:
1. what is you privacy like now? are you keeping you illness hidden - do you need or want to?
2. how much is your copay

If it were me, with a $30 copay and a largely hidden illness, I would not feel compelled.

And something about it gives me the creeps, just a little. Kind of like Robert Johnson selling his soul to the devil so he could learn to play guitar...


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PostPosted: Tue May 25, 2010 6:35 pm 
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Joined: Tue Apr 13, 2010 3:00 pm
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Location: Florida
Thank you Absentee! I thought it was creepy, too. I have a $25 copay (which I can afford), my disease is not obvious, and I want to keep my dx private for as long as I can. Until now, I thought SS was doing very well with their responsiveness but I am very turned off by this subtle attempt at manipulation.


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