To take Copaxone or to not take Copaxone???

A board to discuss the Multiple Sclerosis modifying drug Copaxone

To take Copaxone or to not take Copaxone???

Postby Susanne285 » Fri Oct 15, 2010 6:57 pm

I'm stuck! I can't decide whether to fill my prescription for Copaxone or not. Any insight would be appreciated, but first, a little background...

I am 35 years old, I was diagnosed in August 2010. I had an MRI in March following a migraine, subsequently I had a follow up MRI in three months with a lumbar puncture following that. So, my MS diagnosis came from having a migraine, not from having MS symptoms. No migraine = No MRI = No MS Diagnosis! In retrospect my neurologist feels that I may have had optic neuritis about 18 months ago, despite a clear MRI at that time.

I'm struggling with the decision to start a daily injection regime when I haven't knowingly experienced any MS related symptoms.

I am a little concerned with the number of posts related to injection site reactions... does everyone have them, or are the others not posting about not reacting?

Thanks!
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Re: To take Copaxone or to not take Copaxone???

Postby NHE » Sat Oct 16, 2010 12:23 am

Hi Susanne,

Susanne285 wrote:I'm struggling with the decision to start a daily injection regime when I haven't knowingly experienced any MS related symptoms.

I am a little concerned with the number of posts related to injection site reactions... does everyone have them, or are the others not posting about not reacting?


There are a couple of things you might want to consider. First, if you have no MS symptoms, but received an MS diagnosis, then you can always try getting a second opinion. Insurance companies will usually cover that so it shouldn't be a problem. In addition, you might want to consider looking into the diet and supplement approach. You can find more information on the Diet and Natural Approach forums. However, in brief, eliminate proinflammatory foods such as trans fat and reduce saturated fat. Also consider anti-inflammatory supplements such as green tea, curcumin from turmeric, and r-lipoic acid (an antioxidant). Vitamin D3 balanced with appropriate mineral intake, e.g., calcium, magnesium, and zinc, is also a good idea. I almost forgot to mention omega-3 fatty acids, DHA and EPA, from fish oil. I currently take 6 grams/day of fish oil and they'll have to pry the stuff from my cold, dead hands before I give it up.

Anyways, it's up to you what you decide to do. However, I can understand your hesitation to starting copaxone. What exactly was the basis for your MS diagnosis? What did your spinal tap and MRI show?

NHE
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Re: To take Copaxone or to not take Copaxone???

Postby Susanne285 » Sat Oct 16, 2010 7:39 am

In addition, you might want to consider looking into the diet and supplement approach.

This has been the avenue I have been pursuing. I have a naturopath who has helped me tremendously with what to take. I to love the Omega 3s. Although my cholesterol was just fine before, now it is quite impressive!
My neurologist feels that I am a prime candidate for Copaxone as it is still such an early diagnosis.

What exactly was the basis for your MS diagnosis? What did your spinal tap and MRI show?

Dec 2008 - MRI - three lesions - passed off as age/migraine related (one per decade, less than 4mm is considered normal)
Mar 2010 - MRI - five lesions - one 18x21x14mm (immediately following a very bad migraine) - the neurologist felt this was migraine related
July 2010 - MRI - six lesions - the previous big one was less than 4mm at this time
July 2010 - lumbar puncture - 5-6 oligoclonal bands present that were not present in blood sample

Thanks for your reply.
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