After 6 yrs on Avonex I stopped because I didn't think is was doing anything anymore...my old neuro agreed...without any MRIs other than the initial one. My new neuro is suggesting after reviewing MRIs of the spine which has atrophied but has increased multiple foci but do not demonstrate contrast enhancement-there is no formal stenosis- to do monthly IV steroid and go on Copaxone.
I was thinking to try LDN but not sure it would help...since there are no trials I am basing my thinking on patient reports.
Had CCSVI procedure 8/10 w LIJV lower openend however midsection would not stay optimal. Twisted azygos opened. Mobility issues subside for a few weeks then went back to my cane. Bear hug and floating head above my shoulders was gone for almost 3 months then returned.
Now need to decide on drug protocol...would love your suggestions!