just cant seem to keep up with injections.... am i alone

A board to discuss the Multiple Sclerosis modifying drug Copaxone

just cant seem to keep up with injections.... am i alone

Postby globab » Tue Nov 16, 2010 11:58 am

hi there,

i was dx in 2005 with ms... was on rebif, and would take injections reg for a while, then stop, then i changed to copaxone.. and i just cant seem to take the injection daily.... i will for 3 weeks, then i dont for a bit.... i totally forget....
am i alone with this? or is ther someone else that just cant seem to get with it and do all injections as suppose to ....
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Postby Stabilo » Tue Nov 16, 2010 1:43 pm

Hey Globab,

I'm sure you aren't alone. I have only been on Copaxone since October 7th of this year, but I too struggle, not with doing them, but with the thought of doing them (as I'm sure we all do) I just tell myself it will be worth it when my relapses decrease. My strongest point is my family. I look at my daughters and my husband and realize that they need me and it gives me the strength to keep it up. I came into this whole MS treatment world scared to death of injections, but persevering is more worth it than just letting the disease take control of you. All the luck in the world to you! Take care
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Re: just cant seem to keep up with injections.... am i alone

Postby littlered13 » Sat Feb 19, 2011 1:22 am

globab wrote:hi there,

i was dx in 2005 with ms... was on rebif, and would take injections reg for a while, then stop, then i changed to copaxone.. and i just cant seem to take the injection daily.... i will for 3 weeks, then i dont for a bit.... i totally forget....
am i alone with this? or is ther someone else that just cant seem to get with it and do all injections as suppose to ....


You are not alone. I have various different reasons why I haven't taken them regularly.

1) My sleep schedule is way off. Due to chronic fatigue and back pain, I can not get on a normal sleep schedule no matter how hard I try. When I first started on the drug, I called shared solutions to ask if I could take at maybe 21 or 22 hours instead of at exactly the same time. They told me that it wasn't advised.

Sometimes no matter how hard I try, I can not be awake for the time I took it the day before.

2) I have had 8 or 10 reactions to the meds since I started in June of 2010. I have had to stop it and start it again when my doc tells me its okay. And when they tell me it's okay...I get really nervous and just couldn't do it. I know they tell me to think of the benefits, but the post injections reactions are so horrible (and I get them so frequently) that I am scared.

3) I have had financial issues and have had to go a couple of weeks w/out it. Unfortunately I wasn't aware of the financial assistance program in the beginning and had to pay off past due copay bills before I could get my shots delivered.
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