globab wrote:hi there,
i was dx in 2005 with ms... was on rebif, and would take injections reg for a while, then stop, then i changed to copaxone.. and i just cant seem to take the injection daily.... i will for 3 weeks, then i dont for a bit.... i totally forget....
am i alone with this? or is ther someone else that just cant seem to get with it and do all injections as suppose to ....
You are not alone. I have various different reasons why I haven't taken them regularly.
1) My sleep schedule is way off. Due to chronic fatigue and back pain, I can not get on a normal sleep schedule no matter how hard I try. When I first started on the drug, I called shared solutions to ask if I could take at maybe 21 or 22 hours instead of at exactly the same time. They told me that it wasn't advised.
Sometimes no matter how hard I try, I can not be awake for the time I took it the day before.
2) I have had 8 or 10 reactions to the meds since I started in June of 2010. I have had to stop it and start it again when my doc tells me its okay. And when they tell me it's okay...I get really nervous and just couldn't do it. I know they tell me to think of the benefits, but the post injections reactions are so horrible (and I get them so frequently) that I am scared.
3) I have had financial issues and have had to go a couple of weeks w/out it. Unfortunately I wasn't aware of the financial assistance program in the beginning and had to pay off past due copay bills before I could get my shots delivered.