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This Is MS Multiple Sclerosis Community: Knowledge & Support
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I've seen many posts about people wanting to discontinue Capaxone after CCSVI. My response is that it is too soon to know. I called TEVA and talked with their medical research team. They did not have a positive view of CCSVI because the people they have spoken to did not have a positive response. Some are seeing practioners that may not be part of a research protocol, so the approach may make a huge difference in results. I did encourage TEVA to research Capaxone in CCSVI patients - it is an immune modulator - and may still be useful. I read a few months back a news article stating that a research team was looking into Capaxone as being adjuctive therapy to CCSVI. I can't find it now. Did anyone else see it?
My partner (Emma) has been on Copaxone for a little over a year.
In that time she's suffered some of the the worst relapses she's had in some years (in time and severity).
Emma had the CCSVI procedure on 27/12/2011 the surgeon recommended she continue with all pre procedure treatments and/or drugs. This has more to do with continuity and attributing results to the procedure itself than anything to do with the drugs.
We're now nearly two months on post procedure (which was pretty positive for Emma) and she's not injected for the last two days at her own decision.
Copaxone really doesn't seem to be doing anything to help her whatsoever.
She is going to try a week without at a time and see how she proceeds.
I'm not ready to give up Copaxone until I have my one year follow-up MRI to compare to my research MRI performed at BNAC. The medical researcher I talked to at TEVA told me the strangest thing, he said "We really don't know how Copaxone works." That has me thinking...
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