Already debating going EOD

A board to discuss the Multiple Sclerosis modifying drug Copaxone

Already debating going EOD

Postby sophie447 » Mon Aug 20, 2012 10:08 am

Hello all,

Been on Copax 3 1/2 weeks. Probably doesn't sound like much of an accomplishment to most of you, but I am pleased I am integrating this into my life.

So far, so good, altough I am very fussy about where I inject. Very silly, but I keep color coded real size maps of injections!! Will probably give it up when the sheets are covered :lol:

I keep reading on this med and can't avoid thinking very seriously about going EOD. I first wanted to do 6 full months before reducing. Neuro is not too found of idea of going EOD. He seems to like taking meds as intended, altough he wasn't pushing for me to go on DMD's. I don't seem to have a very active disease (...so far, thank God :smile: ), and he's anxiously waiting for BG 12. His view is to try to maintain myself on Copax waiting for that other med.

I have read abstracts for the 2 Fletcher studies on EOD dosage, and they look OK, altough small studies. Also read the abstract for the TEVA 40 mg 3X/week study, but since that dosage doesn't seem to be in the near future, no point waiting for that. And I certainly won't be injecting myself twice! Also, no need to tell you what Shared Solutions' view is! They do admit that the EOD pattern is very common tough.

I have searched through past posts and found quite a few here are taking that reduced dosage. I anyone feels like posting on that subject, it would be great. More than one head is always better.
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Re: Already debating going EOD

Postby daverestonvirginia » Mon Aug 20, 2012 11:51 am

I was just wondering why you were already thinking of going every other day? Are you having trouble with the injections? It has been over seven years for me already and really not a problem at all. I have missed a day or two every so often but maybe a total of a dozen times in seven years that I did not inject. Good news is I am doing great, just something to think about. Good Luck
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Re: Already debating going EOD

Postby sophie447 » Mon Aug 20, 2012 1:35 pm

daverestonvirginia wrote:I was just wondering why you were already thinking of going every other day? Are you having trouble with the injections? It has been over seven years for me already and really not a problem at all. I have missed a day or two every so often but maybe a total of a dozen times in seven years that I did not inject. Good news is I am doing great, just something to think about. Good Luck


Hi Dave,

A dozen times missed in 7 years! You have my respect and admiration!! You must have done the right thing tough, you say your are doing great.

I have to admit that I hate injecting. I am also not very sick as I got only one episode that was mainly sensitory (legs). I has been 2 years. I haven't taken anything and I am doing just fine. I guess in that sense, it is harder to find the motivation. Also the Dr didn't think DMDs were necessary, but I decided last month that I wanted to do my best to preserve my health. I got very scared by the 2 lesions that appeared on my brain (without noticeable effect tough). 2 Years ago, I only had 3 lesions on my spine.

Some litterature I found seems to indicate that every other day is just as effective as everyday. It certainely made me wonder if that would do the trick for me.

So in a nutshell, that's why I am thinking about reducing to EOD.


I did get the doc's opinion on the subject this afternoon, I'll post that separately.

Keep it up, You probably made the right choice

Sophie
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Already debating going EOD- got the doc's opinion this after

Postby sophie447 » Mon Aug 20, 2012 1:39 pm

Tought it would be interesting to post my doc's opinion about EOD injection.

Hey... just got a return phonecall from the MS clinic nurse after my question to them about EOD injection.

He thinks that reducing to 5 out of 7 days would be reasonable after reaching 'cruising speed' after the firstl 6 months of everyday injection. Not the EOD recommendation I was hoping for, but still interesting.
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