xMatter wrote:So how long have you been on BG-12?
Any new lesions and exacerbations since the start?
Do you genuinely feel BG-12 is the right drug for you?
I am currently waiting for the nurse to appear at house for a home treatment of Copaxone. Another main reason I chose it was because I really want to continue taking LDN and some drugs like Rebif are not recommended to be taken with LDN.
bartman wrote:location- check, bands- check, symptoms-check, lesions- check, the fact that you were treated with 3 weeks of doxy which means your dr. may have thought so too-check. Your dr. treated you with the standard IDSA treatment for lyme. A 23+ and 41+ band on an IGM Western Blot is CDC positive- if I were you I would call your dr. and physically get a copy of the blood tests that he took. An IGG Western Blot would need 5 positive bands to be CDC positive. Which test did you have? Did you have the ELISA test first? then the WB?, then the PCR? And the fact that you did steroids and are worse.
Do you know about the coinfections? Personally, I believe Bartonella is the culprit. When I speak of Lyme, I really mean the 3 B's ...Borrelia, Baronella & Babesia. The symptoms of MS are the same as the symptoms of these infections and lesions can be seen in both.
This is all based on 12 years of misdiagnosed MS for a close cousin who almost lost his life. He then tested for 5 infections and has been treating with antibiotics for 4 years and improved dramatically! It wasn't easy and it took a long while to see improvement.
make sure it is an ILADS dr.
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