Does Copaxone make us more sensitive to cold?

A board to discuss the Multiple Sclerosis modifying drug Copaxone

Does Copaxone make us more sensitive to cold?

Postby Loisa » Fri Aug 18, 2006 11:01 am

Hi, I´m new here and have a question for you guys. I take Copaxone for 2 years and since then the winter seasons are dificult to pass on ok, because I feel a lot of cold that makes me walk slowly and slowly everyday (towards my couch!)... and when the warmer days are back, everything gets back to normal. And before Copaxone and the diagnosis of a demyelinating disease, all I had was blurred vision, twingling sensations, weakness on legs, usually triggered by... hot... that made me stop literally in the middle of the street or on the court just waiting for the body to cool down! :D

In my case, on Copaxone, I now do well on spring/summer days, but winter is hell. Does Copaxone make us more sensitive to cold? Has anything like this hapened to you?

Thanks to all of you who are helping understanding this thing called MS and all its "relatives" diseases and to the makers of this site.
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Loisa
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I am on Copaxone right now

Postby Ronnie » Fri Aug 18, 2006 11:30 am

Dear Loisa:
I have sensitivity to heat, and sometimes when I step into cold water (like in the shower or something), it makes my knees fold.

But, this started happening while I was on Betaseron years ago, and hasn't worsened really while on the Copaxone.

I think one of the problems with MS is that the symptoms shift and change, and we always want to be able to think of a logical reason for the change, and sometimes there really isn't one, or at least not one we can easily identify.

So, heat and cold can both be affecting me at the same time, if I am outside (it has been over 100 degrees here ten days this month) and I have a hose running cold water splash me (we are in a drought and have to water our lawns on our designated day). This makes me very off-balance! But I don't blame the Copaxone. It is just the way the symptoms are lining up right now for me.

Take care!
Ronnie
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Re: I am on Copaxone right now

Postby Loisa » Tue Aug 29, 2006 7:23 am

Ronnie wrote:I think one of the problems with MS is that the symptoms shift and change, and we always want to be able to think of a logical reason for the change, and sometimes there really isn't one, or at least not one we can easily identify.

You're right Ronnie, the symptoms change over the years and it is useless trying to find an unique explanation for everyone of them. Thinking to much about it, perhaps is just only a sign that we are a little sad for the things happening without our control...

I have only posted this question because more people said the same, that since they sarted copaxone they felt much more cold. But... if sensitive symtoms are the ones I will have to deal with, maybe it's time to think I am a very very lucky person...

The positive thing is that relapses are gone, and recent MRI show no new lesions. Life depends on our thoughts and atitude. :D Thanks for your support Ronnie. Take care! :wink:
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