Last batch of attacks signaled a shift to SPMS from RRMS and neuro put us on Copaxone. There have been no new attacks
Hi Napay i just wondered what caused them to sat you are SPMS now if you are still having attacks, do you mean by that that you have good and bad days. You must still be able to distingush attacks, please elaberate on your condition.
My wife had gone over 15 years with an exaserbation maybe once every 2 years while on Avonex. Solumedural would correct the exaserbations and she'd return to her normal self. In the last year or so exaserbations come more frequently and the Solumedural did not seem to have such a lasting effect. Walking also became much much harder. The neuro recommended a change in treatment to Copaxone and then adding Novantrone later. Even after the first few months on Copaxone there has been significant improvement in walking and balance and no cane needed. We started on novantrone a bit after the Copaxone and are now into the 4th infusion. Between the 3rd and 4th we had something that seemed like an exaserbation, but was clearly different than prior ones. The neuro put her on IVIG and it cleared up and now the only problem is an excessive desire to garden when it's 90 degrees outside.
I realize one might credit novantrone with the benefits that she's received, and I suppose it's a combination of the 2. But, it is clear that somewhere along the way the Avonex was not doing it anymore. Also, the initial period on Copaxone but before novantone was accompanied by significantly improved walking. I know it's hard to nail down cause and effect and I would say this is a testimonial of sorts and if you have read my posts here, you know I don't go for testimonials. But, I think Copaxone and Novantrone have some good studies behind them and I know I read a real good one that was 5 years of combination treatment.
Until something better comes along, I like this. But, we're also taking sups and I will also say I bought shares of Opexa. ciao, napay