Im back and I just want to say that after being off the Copaxone poison eight months I feel like and I actually do....have a new life.
Long story I was diagnosed with definite Multiple Sclerosis five years ago after a couple days of dizziness which morphed into vertigo, nausea, diploma confusion and an inability to walk. MRI found an area of demylenation near my brain stem and two tiny t flares. Spinal neg for bands but high basic protein. Thin, white, 40 yo female from Pacific northwest..( all strong signs of MS).
I started copaxone one month later when I reported to neuro that my left side of my body was numb. He said that this was my second relapse thus I started Copaxone. Went to second opinion, second neuro said probable ms, keep up the shots.
Basically I was sick as hell in bed for 6 months. 5 days after starting the Copaxone I began the constant dystonic head tremors during all waking hours. Neuro said it was another exasperation;absolutely MS, you just got hit hard....... In the 4 years I was on copaxone I never had another brain lesion, my original lesion disappeared so neuro said that the copaxone was working. stayed in bed for 12 hours a day except yoga and doctors...
Jump forward to my above post which explained that I was misdiagnosed for 4.5 years. Dr. Michael Olek diagnosed me as having had a brainstem stroke. I am off the drugs and my tremor almost gone, my fatigue is better, I dont feel depressed, emotional and sick all day. I CAN DRIVE...I am healthy. I am taking classes to go back to work.
Teva (makers of Copaxone) told me no other patient has ever reported tremors ....but hey did they ever tell us about the LIPO scars in the literature??? And that no studies had been done on the effects of Copaxone on non-ms people. WT@?
I TRUELY believe that the pharmaceutical companies are running all studies and influencing all published literature about this disease.
Here is what I know..... EVERY study on copaxone but one, of the probably 100 articles that I have read is sponsored or funded directly or INDIRECTLY by drug companies or doctors funded by them. Even the National MS society receives millions from this drug company. This is understandable because Joe Neurologist at University Brain and his fellow scientist lack independent millions to create drugs.
Look at the research sources, the doctors who publish the studies, look at the stock information and you will see that the MS drugs are big big money for investors. The only independent study I found said basically all CRAB have the same slowing of progression rate which incidentally is the same rate they found in the PLACEBO!!!!!! 30% These drugs are better than nothing but they are not that good folks.
My neuro gave me copaxone after a clinically Isolated attack based on the latest gold standard for MS diagnostic criteria... 2005 Mc Donald Criteria. But guess who created and modified this criteria? DRUG COMPANIES, who now says the earlier you start disease modifying drugs the better. Remember when the study came out trying to find the benefits of double Copaxone dosages...??? Original Neuro probably ruled out stroke when I didn't die.
I have APS (Antiphospholipid syndrome or Hughes syndrome) my blood colagulates more easily than normal thus the stroke, tingling, leg dragging, mental confusion, fatique, weakness, brain lesions, optic issues.
Please note my original blood test for this disease was negative because the protein for APS fluctuates you have to have few blood test every 12 weeks to really rule APS out because one blood test can be negative and you may still have APS... APS has only been diagnosed for the past 20 years and MANY Doctors dont know much about it. APS also causes ALL the symptoms of MS, but with the addition of miscarrages, TIAs and strokes. Please for the love of all things sacred...(Tommy Boy)
research APS and get tested often. I am off the Copaxone poison, tremor meds, provigil but sadly I do have to take.........a baby aspirin once a day...... I know there are other APS misdiagnosis out there. Some doctors in the UK believe that up to a third of all MS is really APS. I hope I help someone. Heather