Well, it turns out that, after 6 months almost to the day on Copaxone, I seem to have developed an allergy to it. On June 4 I had a reaction to Copaxone that lasted almost an hour, and included features like a swelling face and mouth, stiff eye muscles (the ones that move the eyeballs), and a tickle in my throat that made me cough (throat closing??). Tingling/burning hands and feet, too. Had the racing heart that comes with the normal IPIR, too. Shared Solutions read from their script and cooed that it was normal, but that I should tell my neuro and not take the drug until he said to go ahead.
To Shared Solutions' dismay, my neurologist (very prominent doctor mentioned above) felt strongly that I should not take Copaxone again, lest I end up needing an emergency tracheotomy. He has discussed thousands of reactions to Copaxone with patients, and this one sounded like an allergic reaction to him. Bummer, I guess, to be a "failed" Copaxone patient, but I'm going to take his advice on this one for sure.
I never stopped doing my strict Swank-inspired diet or my supplements and exercises, so I'm on that (and no drugs) til my next appointment in January. Luckily, I feel fine and dandy, except for some mild weakness and fatigue, but no pain or tingling or numbness, thank goodness.
I'm not missing those bee stings every night, I tell you.
Jack Sprat / Longing4Cheese
Male, 44, Dx PPMS 6/2007, Re-Dx RRMS 1/2009. Unofficial EDSS: 2-ish. Modified Swank diet, supplements and exercise (walk, yoga, weights). Tried Copaxone 1/09, stopped after possible allergic reaxn 6/09. Began Avonex April 2010.