Newly diagnosed with MS RRMS as of Feb 2008 2 lesions seens on MRI and positive for Onco Bands on the Spinal Tap.
Started Betaseron but became very ill. Not to mention the side affects of feeling like I had the flu everyday of my life, weight gain and more Toughed out the drug until June 12 when I stopped on my own. I simply could not take the side affects.
Met with Neuro Docs. I wanted to go on Tysabri since they gave me that option but at that appt, they quickly took away that option saying it was not a first line therapy even though I've been told it can be.
In any event I had refused any meds after the Betaseron nightmare but they talked to me and I agreed to try Copaxone.
Started that on July 12. Since then I have not had any side affects in terms of the flushing, increased heart rate..none of that.
I do however notice I feel my MS more if that makes sense. Lots of stiffness and if I lay down to sleep or anything, I feel a bunch of tingling and numbing which I never did before.
The last week I have noticed an increase in pain/stiffness. I'm just wondering with MS, will you just forever be in pain regardless what you do. I'm trying to find something to stop the stiffness.
I was given Baclofen. I stopped that. Bad side affects. Zanaflex- was a no go. Neurontin I stopped due to side affects. I occasionally use Provigil for fatigue.
I'm a Nurse so this is very hard for me. I refuse to give up my job, I walk as much as I can even if it's just around the house because I'm so afraid of not being able to walk one day.
I'm not sure about the Copaxone being aggressive enough for my case. My docs wished I could have stayed on Betaseron but I could not tolerate it any longer. I do not want Rebif due to it also being an interferon and they advised not go use the once a week IM injection that starts with an A..the name escapes me.
My legs are just always killing me and by the end of the day they are so stiff but also when I first wake up from sleeping, I can hardley move.
Thanks for any thoughts.