Hello and Thank you.
I was on Betaseron from Feb until June and deathly ill from that stuff. I'm told I can't tolerate Interferons so this was my only choice which I didn't even want to be on but what could I do. I was so sick and just caved in.
I started the Copaxone on July 12 to be exact. I know its not enough time but it seems since I had my initial attack in Jan which by the first of Feb I was Dx with MS, I have been sick every single day of this year and I mean sick sick. I've stayed working. Im a Nurse and I refuse to stop working and stay home. I won't hear of it. I did miss 2 weeks when I was initially attacked with this monster. The worst two weeks of my life between not knowing what was wrong, all the testing, being told it was a seizure disorder then a brain tumor and finally MS!
I just have stayed sick. This time is different than being sick on Betaseron. I don't have any flu type things. I just hurt all over so bad. My hips, lower back are the worst and my walking is worse than before. I don't know how to go from one hour to the next but I do.
I did start taking some magnesium to see if that helps at the advice of a great person on the site. Initially I was given so many meds to stop the electrical shock attacks I was having that according to my new neuro, they were totally overdosing me on meds at my first neuro's office.
He did ask me to try Zanaflex again at night and take only 2 mgs. I have and that does let me sleep but I wake up in the same way, very sore, and very hard to walk and just overall cruddy.
My last round of blood work looked okay except for my TSH was off some but they stuck me on the smallest dose of synthroid to see if that helps but it takes about 6 weeks per the docs to see if that helps.
I stopped using the Neurontin, Baclofen and Provigil. Flushed those all.
When I asked my new doc is this how my life will be..is having MS going to make me feel this horrible every single day. He said NO, I should not be this sick.
Oh I was given Emergency Lortab by my other neuro which I used maybe 4 times when the pain became intolerable. I have a high pain threshold but on those days, I could not bear it.
Well I didn't take my shot last night and today I feel the same. I'm not sure one day makes a difference. I did do some stretching excercises to try and see if that helps. I'm so tired of this. I can't believe it to this day that I even have this Monster called MS! I'm doing all I can to fight it.
Thanks very much for your response.
Do you both really beleive that Copaxone starts working within 6 mos. My old Neuro said new data showed it works faster but to be honest I'm so sick of what the docs say, date, research info and all. I just want some plain simple answers and to wake up one day and feel normal and not so sick.
Thank you once again..for everything
oh I keep forgetting. I was checked for a UTI but nothing. The new Duke Neuro Doc wants me to stay on Copaxone until Dec, repeat MRI's and go from there. I agree that I will not start yet another shot at this point either. I'll either stick to this one or stop all together. He was also thinking the first Neuro called it wrong..in terms of it being RRMS and maybe its more serious but no way to tell.