My Copaxone has arrived

A board to discuss the Multiple Sclerosis modifying drug Copaxone

My Copaxone has arrived

Postby LR1234 » Fri Aug 28, 2009 3:57 am

Hi, My copaxone has arrived today, It will be the first DMD I have taken.
It really brings home the fact that you have MS when the package arrives with all its injections and booklets etc:(
The problem is, I don't know If I have any faith that it will do anything plus I hate injections.
Last edited by LR1234 on Fri Aug 28, 2009 5:33 am, edited 1 time in total.
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Postby Needled » Fri Aug 28, 2009 5:31 am

Hi LR, When my supplies arrived, I cried for days. I refused to open the box and put it under a table so I didn't have to look at it. It was stark evidence staring me in the face (if I were going to look at it!) that this was very real. I hope you have a Copaxone nurse coming out to show you how to do the injections? If not, call them and arrange that. As for it not doing anything, I know how you feel on that one, too. But I guess I'm just too afraid not to do it, to at least try it, and see how it goes. And my other thought on that was if I'm going through this trauma every day, the shots d*amn well better be doing something. I try to make my mad work for me. I think it is, because fingers' crossed, I haven't had a relapse in the three years I've been taking it.
As for the shots -- hah!! My name isn't Needled for nothin'! I HATE shots, always have, always will. But here's the big but -- you develop a routine and it becomes just something you have to do. It doesn't take more than 10 minutes from start to finish. 2 minutes to let the area dry from the alcohol wipe (although my husband insists 30 seconds is plenty of time, he's not the needle-phobe getting the shot), 10 seconds for the actual shot, 2 minutes of holding a cotton pad on the shot, just because it feels better for me, put you're stuff away, and you're done. I just refused to let a 10-second shot ruin my entire day. Don't get me wrong -- I'll give it up in a heartbeat and do my version of a happy dance when that day comes. Until then, one day at a time.
And here's my tip for figuring out the injection areas -- when the nurse comes, ask her to draw the injection areas on you with a eyebrow pencil. She might look at you funny, but insist on it. Then if you have a digital camera, take pictures so you always have a reference point. I have other tips which I'd be happy to share if you'd like. Good Luck!!
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Postby LR1234 » Fri Aug 28, 2009 5:38 am

Thanks for your reply needled:) My plan is to do the copaxone and abx until I can have treatment for CCSVI and then I will re assess the situation.
I hope that it keeps the inflammation at bay and holds me steady until we get to the true cause of this disease. My dream is to wake up one morning and feel that the MS has gone and that I can trust my body again!
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Postby notasperfectasyou » Fri Aug 28, 2009 7:55 am

It's just a blue box. I hate needles, but I'm not the one with MS. Kim overlapped Copaxone with the first 6 months of ABX. There are no issues here that we uncovered. If you have read my post about Copaxone, you'll know that we found different ways to do it, sorta like finding abx - you don't have to do it the exact way the experts say. In any case, rate your first bee sting for us on a scale of 1 to 10. It doesn't bug some folks and others just cringe. Ken
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Postby LR1234 » Fri Aug 28, 2009 8:08 am

Ok:) I have to first ask one of the nurses to come here to show me how it is done. Hopefully they will be able to arrange a visit soon. I will keep you posted x
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Postby Wonderfulworld » Fri Aug 28, 2009 2:28 pm

Good luck LR1234.
I hate injections too, been on them 9 years now, and it does become second nature to you after a while.

Best advice I can give you is that if you're like me and you don't like the injection, do it first thing - it gets it over and done with for that day adn then you don't have it hanging over you all day long. Once I changed to breakfast injections I felt mentally better about it. At least I'd achieved one thing before breakfast was finished :lol:

Best of luck. We are all here if you run into problems but you'll be fine. :wink:
~~~~~~~~~~~~~~~
Concussus Resurgo
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RR-MS dx 1998 and Coeliac dx 2003
~~~~~~~~~~~~~~~
Copaxone, Cymbalta. EPO, Fish Oils, Vitamin D3 2000 IU daily, Cal/Mag/Zinc, Multivitamin/mineral, Co-Enzyme Q10, Probiotics, Milk Thistle.
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Postby LR1234 » Fri Aug 28, 2009 4:03 pm

Thanks everyone, much appreciated x
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