Thanks, Deb. Actually, other than the fact that it is every day, Copaxone has always frightened me less than the interferons. Colby usually tolerates meds pretty well, and we're hoping this will be the case.
Yes, we have lots of info, but all of it produced by the pharma, and you know how much faith I put into what they have to say!
So, I'm back in full swing research mode again.
I really like this new doc. He's very down to earth, and more cautious about the MS drugs - seems to be taking Colby's age and well being into account in all of it, which is a first for us. He listened carefully to the problems he experienced with the interferons, and agreed that depression that severe was unacceptable at that age, especially when none of the good antidepressants are approved for teen use. He totally backed off from Tysabri and said he had lost several patients over refusing to prescribe it until all the "kinks" were worked out. I felt the same way, so that was a plus for him from the start. He's really intrigued by LDN, and has agreed to prescribe it but wants us to use the Copaxone first.
I am, of course, very hesitant to take him off of the LDN for the monthly trial of Copaxone alone that he is asking for, and I'm fighting the ex on that one. I truly believe that LDN is the only thing that has stood between Colby and a major attack since his gall bladder removal in December. He has had some very mild transient symptoms, but nothing in comparison to the attacks he had pre LDN.
I'm also really interested in minocycline, and the other new drugs that are on the pipeline. The oral pill is intriguing, and so is the 6 month i.v. that is being tested in Canada for SPMS. This new doc is intrigued by minocycline as well, and we are hopeful that if the Copaxone does not work out for him, he will go with the mino and LDN.
Hope you have a great weekend!