Where do you get your motivation to keep shooting?

A board to discuss the Multiple Sclerosis modifying drug Copaxone

Postby dlb » Wed Feb 17, 2010 10:57 am

burntsienna,

I had a lot of problems with my leg injections. SS suggested I use a hot compress before the inj & then ice it after. That helped but after 2 years, I eventually gave up the leg injections. As per SS, everyone has their least fav inj sites & most favorable. If I could inj every shot in my belly, I'd be happy but that would eventually be problematic for me, I know! I have evolved but only after many attempts to make the leg inj part of my rotation routine. I now do my arms, hips & 3 belly shots for a seven site rotation. It's not the recommended rotation so I hesitate to post this but it is helping me stay true to the treatment. Hope tonight is better for you - do try a cool compress. If you opt for an ice pack - don't apply directly to the skin but wrap in a towel or something. I'll be rooting for you!
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Postby burntsienna » Wed Feb 17, 2010 11:40 am

thanks. i did do the heat before, ice after last night. i must have hit something i shouldn't have. i'll let you know how tonight goes.
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Postby nacho » Wed Feb 17, 2010 11:56 am

I stopped taking my shots about three months ago. I feel fine. Maybe even better than I did while I was taking the shots. In my opinion Copaxone is a complete ripoff. Especially if CCSVI turns out to be everything that I think it is. Drop me a line if you need Copaxone. I have three boxes of the shit in my frigde taking up much needed space.
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Postby LadyDoe » Sat Mar 13, 2010 7:43 am

Motivation to keep taking it?
Well.. Reflecting on my neuroscience background, I have previously assessed many MS sufferers in various stages of disease and probable MS. Progressed MS is not something that I would like to experience - ever!
I figured that tolerating 10mins of pain per daily copaxone shot to starve of progression is a motivating factor in that there are another 1430minutes a day pain free.. and hopefully another extra few more years of RRMS.
... if it's going to be, it's up to me ... :)
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Postby dlb » Sat Mar 13, 2010 9:25 am

LadyDoe,

I second your comments! I have not had an attack since 2006. I had a bit of an attack about 4 months into starting Copaxone (it is deemed effective 6-8 months after beginning therapy), and that was my last. My neuro gets so excited at my annuals check ups because she truly believes that I am doing so well because we started early with the Copaxone. I don't know - I'm new to this! All I know is that I had attacks in 2005 & started the shots in 2006 & I have had nothing since the 1 I spoke about above. I have to trust in her experience with the disease & hopefully buy some time until something better comes along. Your motto says it best - I still love your words - such "pearls"!
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