lyndacarol wrote:
Diane, I am RIGHT there with you when you say,
Quote:
Docs get on their highhorse sometime and so do people in general.
Thing is that I often feel (this is terrible to admit) that I'd love to let the doc and others experience 'me' (how I feel) for awhile. Maybe that will wake them up to reality.
In fact, I have SEVERAL nonphysicians I would like to share MS with for just a short while!
And I have done my share of falling, too. My best bruise came when my cheek bone connected with the tile floor.
I understand your frustration completely; this MS is the pits! I cannot explain the reason, but I am usually optimistic (although there are plenty of times when the tears flow -- this does not help my sinus drainage problem!)
In the meantime, we kindred spirits must just hang together and support each other.

Yes, we should support each other and I'm happy to listen when anyone wants to vent. It helps to have someone to relate to. I can't see your face, but we are linked by our dx and our experience.
It is very important to have someone to listen to us.
I don't expect miracles; I too shed some tears, but mostly I just look for relief in the moment.
I still like to look forward to the day. I like to imagine or hope things will be better for me and for all of us.
Diane