This is my first post to this forum and from what I"ve read, I think there's a lot of great people here with a lot more experience than I have on MS and would like some advice or guidance as to where I can go from here.
A Little background, I'm 46 and have had 2 previous "flare-ups" one in 2003 and again in 2006 which at the time couldn't be explained or understood at the time, and I was tested for ADHD, arthritis, and a number of other things with all negative results.
Things kind of went back to "normal" with the exception of my cognitive difficulties but for the most part I thought I was mostly back on my game.
Then at the beginning of 2009, I felt something happening again, and I started really losing my short term memory making my work very difficult again. I'm a reasearch engineer so I do a lot of analysis that requires me to work long hours with a lot of concentration every day.
Then the physical symptoms started.
Ringing in the ears (real bad)
The worst headaches I've ever had which I never had before (around my temples)
Heat sensitivity ( pretty bad)
Numbness in arms, legs, and face with lips tingling on and off
I'm on my third Neurologist here in Southern California and after multiple tests for MS the only thing we have been able to find are very small lesions in my brain but not nearly the size or number of lesions needed for a diagnosis.
I keep getting the same story that it's all in my head.
After reading everything I could find on this topic, I can agree that depression and/or anxiety could cause many of my problems like:
Ringing in the ears
But what I don't buy is that depression and/or anxiety could cause me to suffer from heat intolerance.
I love the sun, I love the heat, I love boating in hot weather and that's why I live in Southern California, and now I'm unable to go outside on a
warm day as my symptoms get real bad especially the headaches which are unbearable.
My latest Neuro at least is treating my fatigue and spasticity symptoms with Amantadine (200mg daily), and Baclofen (10-20 mg daily) to help me function and I've been able return to work part time (doing administrative work to keep my insurance)
As a side note, my sister had MS that started the exact same way and she was unable to be diagnosed until she lost nearly 90% functionality of one arm. Then over a year later, a spinal tap finally confirmed the diagnosis. She lost her battle with MS in 2007 after suffering with it for almost 21 years.
It seems that I'm following the same path as my sister as far as symptoms and the lack of test results to confirm what's going on. I really don't want to lose the use of a limb before I get this diagnosed and treated.
I'm very frustrated with the conclusions I hear from NEurlogists that keep insisting that everything is happening due to depression and/or anxiety and they want to keep pumping me full of anti-depressants and anti-anxiety medications which haven't helped after trying many of them.
I'm confused and frustrated and don't know where to turn for help. Does anyone have any experience with how I'm feeling that can advise me of what I should do next or a good Neurologist in Southern California that can help me?