Poor you, my heart goes out to you.
How is your illness right now? Hopefully it is manageable and the idea of being ill is worse than the reality.
You have to take each day as it comes, and don't give up hope. And if anything is troubling you I'm sure you can find plenty of support here.
I would look into high dose vitamin D3 treatment, although this is not so important now, in summer, providing you are getting plenty of direct exposure to it.
I would also look into the CCSVI forum, and CCSVI testing and treatment.
All the best!