Let me begin by saying I really am not a stupid person, but as I started to think about the history and timing of what I've done...let's just say I'm sitting here shaking my head.
In 84 after my diagnosis I didn't go back to the neuro that gave the MS diagnosis. He gave me the diagnosis over the phone and said call him if I had any questions. The internet wasn't like today and the libraries didn't have much. Since my torso tightness was gone and felt fine I pretty much stuck my head in the sand when it came to ms.
Over the next 15 or so years I exercised a lot, but had a pretty crappy diet (pizza, cheese dogs, gyros, ethnic foods, etc). Remember, I live in one of the greatest cities in the country!
99 - I first started with bee stings on my spine. I did this for a little over a year. At this time my legs were starting to feel stiff and the stings actually produced tingling sensations down my legs. No other side effects other than a sore spine for about an hour or so after.
00 - Went to my first neuro. He put me on Betaseron. I was on it about 1.5 years. I was really tired of the every other day and felt I was slowly progressing so switched to Avonex. After about 1.5 on that I stopped.
2004 - By this time my walking was really bad and I was tired of my first neuro and switched. Within a week I was in the hospital getting chemo/steroid treatments. They consisted of six treatments, each with three days in the hospital getting chemo and steroids. They did seem to give me more strength and did help. But I continued to progress.
2007 - Tysabri for about a year. Some improvement initially, but slowly progressing.
2008 - Antibiotics for 1.5 years. Some slight improvement, but lost that. (nothing like Robbie's!) Basically, my feet were warmer and less purple. Kinda of sad when less purple in your feet is an improvement.
2011 - Started the Wahls program of diet, stimulation and supplements. I've been on it for about 3 months. Some slight improvement in how I take my steps but no real change in distance walked, etc.
During this time I also tried LDN (no change) and Rebif (bad reaction). I also cleaned up my diet around 2004 or so, but really have with the Wahls program. Been on supplements for quite some time.
Unlike Robbie having the foresight to prepare, I was in denial and did not take early action.
That's my story, sorry for the length.