Erectile Dysfunction?

A forum to talk about the general challenges of daily life with MS.
Post Reply
SassyBoots
Newbie
Posts: 6
Joined: Sat Aug 10, 2013 9:57 am

Erectile Dysfunction?

Post by SassyBoots »

Hi Everyone.

I don't know if I am posting in the right place, so if I'm not, then please accept my apologies.

I recently met a man I really like who has MS. He is a wonderful man and I feel really lucky that we got the chance to get together. Been about two months now.

We just started getting intimate a couple of weeks ago. The issue we are having is that he can obtain an erection during foreplay, but once it gets down to actual penetration and making love, he can't seem to maintain it. He's told me he's very heat sensitive, so when things "heat up" it takes alot out of him. He has had to make sure the window in his room is open, and that the ceiling fan above his bed is running to keep him cool, which is not a big deal for me.

The other night we were just playing around after him losing his erection again, and this time I performed fellatio, and even THAT didn't really help. He said he enjoyed it, but it didn't have the...."desired effect", lol.

We tried again last night, with pretty much the same effect. This time, I asked if it was me. He seemed really shocked that I would even ask. But if there are any other women on here that have gone through this experience, you know what it does to YOUR psyche, not to mention your partners.

I've never ever dealt with the issue of erectile dysfunction in a completely healthy partner, so aside from the standard remedies(take the pressure off the act, reassure, and communicate)I'm not sure how else to deal with it, or what will help. He does smoke, drinks alcohol, and right or wrong, smokes the occasional joint....both because he just likes pot, and because he says it does help with some of the discomfort from the disease.

He is currently on Copaxone injections for the MS, and has been for about two and a half, maybe three months.

I really really like this guy, and want to help him all I can to deal with this, not to mention to support and help him deal with the issues from the disease in general. He was diagnosed several years ago with recurring remitting ms, but says he never has had any serious issues from the disease until around February of this year. The attack he had then wound him up in the hospital.

He is struggling with the changes all of this has wrought, so right now he is mentally and physically fatigued as well.

I hope someone has had the same experiences and can help us learn how to work through this. All answers and suggestions would be very appreciated, including if someone can list side effects of Copaxone? I suggested he may want to look into that as well. As far as the drug goes, even I can see the difference its made for him, it seems to be working really well as far as effectiveness goes. I see a big difference in his mobility and fine motor control since he's been on it, even in the short period of time that I have known him.

Thanks!!!
User avatar
jimmylegs
Volunteer Moderator
Posts: 12592
Joined: Sat Mar 11, 2006 3:00 pm

Re: Erectile Dysfunction?

Post by jimmylegs »

hi sassy, my focus is on the nutrition side of things. one of the key nutrients for ms and for general reproductive health is zinc. zinc is depleted by many things including cigarette smoking and alcohol consumption.

I was in a long term relationship with a 'healthy' (non-ms at least) picky eater who had issues with ED. we worked around it and it wasn't really an issue.

when I started working on nutrition so did he and although he was not measuring zinc status we knew from his diet and lifestyle that his status would likely be poor. after general work on nutrition including supplements that included zinc, his functionality improved. we had broken up by this time though, so, lucky someone else lol :)

i'm not surprised your partner was shocked to hear you ask if it was you.. *guys* feel inadequate and it can be a surprise to learn that a partner can start to take it on board and begin to feel somehow inadequate too (but I fully understand, been there done that)

I haven't heard anything about the potential influences/consequences of copaxone on zinc status.

anyway I've mentioned zinc to others for help in the bedroom, with good followup reports. interestingly oysters, a well-known aphrodisiac, are the single richest dietary source of zinc. om nom nom ;)
active members shape site content. if there is a problem, speak up!
use the report button to flag problematic post content to volunteer moderators' attention.
SassyBoots
Newbie
Posts: 6
Joined: Sat Aug 10, 2013 9:57 am

Re: Erectile Dysfunction?

Post by SassyBoots »

Thank you!

I know he is taking a really good combination pack of vitamins and supplements, but not sure about the zinc content, but I will find out.

When we were just hanging out last night, he stated he is ready to try a lifestyle change(quitting smoking and laying off the alcohol at least a bit. He doesn't have issues with consumption of it, not by a long shot, but with it being summer there is always beer or wine in the fridge, lol).

He is allergic to fish, but not to seafood, so the oysters are an interesting idea. I'll mention it next time I see him.

:-D :-D :-D :-D
User avatar
jimmylegs
Volunteer Moderator
Posts: 12592
Joined: Sat Mar 11, 2006 3:00 pm

Re: Erectile Dysfunction?

Post by jimmylegs »

if you can find out the brand of multi, a link or two might provide lots of useful online details.

I find that multis are generally designed to maintain health, but are not delivered in therapeutic amounts aimed at correcting deficiencies associated with illness. that's why testing is important. patients should know if a regular multi is having an effect, and if they are taking higher therapeutic doses, they need to know when and if they should stop.

great news re the lifestyle change, it can only help!

if his zinc status is poor it could be linked to reactions to various foods. this is a tough assertion to extract intact from research, but the evidence is there if in a roundabout way so far.
active members shape site content. if there is a problem, speak up!
use the report button to flag problematic post content to volunteer moderators' attention.
Anonymoose
Family Elder
Posts: 1190
Joined: Tue Oct 09, 2012 6:33 am

Re: Erectile Dysfunction?

Post by Anonymoose »

Trying to keep this not trashy but it is what it is...

Have you tried a certain type of ring for a certain male appendage? They trap the blood. I suggest putting it on before things reach desired psi...otherwise it can be quite a wrestling match. And don't leave it on too long or things might feel funny the next day. :ohno:

I second JL's recommendation for zinc. It's great for girls too. :D

Good luck!
User avatar
jimmylegs
Volunteer Moderator
Posts: 12592
Joined: Sat Mar 11, 2006 3:00 pm

Re: Erectile Dysfunction?

Post by jimmylegs »

PSI LOL ANON
active members shape site content. if there is a problem, speak up!
use the report button to flag problematic post content to volunteer moderators' attention.
User avatar
milesap
Family Elder
Posts: 147
Joined: Wed Jul 20, 2011 2:00 pm

Re: Erectile Dysfunction?

Post by milesap »

Here is a suggestion: Some MS folks are saying that the combination of Viagra and Niacin reduces heat tolerance because of improved blood flow. So have him try it - if not you can always stop
aredmosquito
Getting to Know You...
Posts: 19
Joined: Sun Mar 17, 2013 8:13 am
Location: Southeast WI, USA

Re: Erectile Dysfunction?

Post by aredmosquito »

I second Anonymoose. The rings do help. I recommend a nice stretchy silicone one.
Diagnosed with RRMS March 2013.
Rebif May 2013 - September 2014.
Gilenya since November 2014.
EDSS 3.
SassyBoots
Newbie
Posts: 6
Joined: Sat Aug 10, 2013 9:57 am

Re: Erectile Dysfunction?

Post by SassyBoots »

Hey guys!!

Thanks for the great suggestions. I never even thought of the ring....lol.....although I know they have been around forever. :-D

I'll see how things go going forward....hoping its going to get better, pretty sure it will. I know he won't be adverse to trying the ring idea, he's pretty open minded about that sort of stuff for "adult playtime" lol.

I always thought that Niacin CAUSED hot flashes????? Is it because the Viagra does something to counter act it? Interesting, I'll have to mention that too.

I'm seriously hoping for this "lifestyle change" he was talking about....lets hope he walks the walk. He is out camping in Saskatchewan with his buddy and the kids over the week last week and sounds like they partied it up pretty good. I know (from personal experience, lol)that too much alcohol can affect even a healthy man, as can the pot and the cigarettes, as far as ED goes. Compound that with the issues with MS, just makes it worse of course.

Here's hoping.

If anyone has any other suggestions or advice to add, I'd be so grateful to hear it....until then thanks and have a great weekend!!!!!

:razz: :razz: :razz:
Jimpsull
Family Elder
Posts: 130
Joined: Thu May 16, 2013 7:49 pm

Re: Erectile Dysfunction?

Post by Jimpsull »

The e.d medicines are really good. I've done the healthy eating and nutritional supplements but nothing has been as sure as Levitra or Viagra.

If cost gets to be an issue I've heard there are countries where Viagra is generic (it has been on the market more than 15 years). I've heard they ship internationally.

Timing and dosing can be tricky but I'm sure you'll figure it out.
Troll
Newbie
Posts: 1
Joined: Thu Mar 09, 2017 6:51 am

Re: Erectile Dysfunction?

Post by Troll »

Ugh:( It's awful. I have ED 5 year sad.gif and I decided to use pills. At first I laughed at the idea but now it's great. I was very skeptical. I feel like a man all over again.
User avatar
jimmylegs
Volunteer Moderator
Posts: 12592
Joined: Sat Mar 11, 2006 3:00 pm

study: who needs viagra? Re: Erectile Dysfunction?

Post by jimmylegs »

doing the rounds of recent research
The impact of hypomagnesemia on erectile dysfunction in elderly, non-diabetic, stage 3 and 4 chronic kidney disease patients: a prospective cross-sectional study
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5340248/

... The prevalence of ED was higher among hypomagnesemic subjects compared to that among normomagnesemics (93.3% vs 70.8%, P<0.001).

... Serum magnesium ≤1.85 mg/dL was the best cutoff point for prediction of ED.

... Our data support that ED is related to hypomagnesemia in elderly patients with moderately to severely reduced kidney function.
SO... 1.85 is WELL down in the unpleasant end of 'normal', and you want to be up closer to 2.7 thanks very much :S
get it up, gentlemen ;)

ps. they'll be addressing the magnesium scare tactics re CKD any time now... http://www.mdpi.com/2072-6643/9/2/112/htm
active members shape site content. if there is a problem, speak up!
use the report button to flag problematic post content to volunteer moderators' attention.
dustin99
Newbie
Posts: 1
Joined: Sat Apr 29, 2017 12:44 am

Re: study: who needs viagra? Re: Erectile Dysfunction?

Post by dustin99 »

Better try to find Javaroni V, Neves MF. Erectile dysfunction and hypertension: impact on cardiovascular risk and treatment. Int J Hypertens. 2012;2012:627278. http://eddrugs2017.com/ is also good source to read about ED and medications.
Also Male Extra is good supplement to fix ED.
https://malepenisenlargementpills.com/male-extra/
jimmylegs wrote:doing the rounds of recent research
The impact of hypomagnesemia on erectile dysfunction in elderly, non-diabetic, stage 3 and 4 chronic kidney disease patients: a prospective cross-sectional study
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5340248/

... The prevalence of ED was higher among hypomagnesemic subjects compared to that among normomagnesemics (93.3% vs 70.8%, P<0.001).

... Serum magnesium ≤1.85 mg/dL was the best cutoff point for prediction of ED.

... Our data support that ED is related to hypomagnesemia in elderly patients with moderately to severely reduced kidney function.
SO... 1.85 is WELL down in the unpleasant end of 'normal', and you want to be up closer to 2.7 thanks very much :S
get it up, gentlemen ;)

ps. they'll be addressing the magnesium scare tactics re CKD any time now... http://www.mdpi.com/2072-6643/9/2/112/htm
Last edited by dustin99 on Tue Mar 06, 2018 1:46 am, edited 2 times in total.
User avatar
jimmylegs
Volunteer Moderator
Posts: 12592
Joined: Sat Mar 11, 2006 3:00 pm

Re: Erectile Dysfunction?

Post by jimmylegs »

mag status is directly related to hypertension and cardiovascular illness as well. handy links to related recent research:

https://scholar.google.ca/scholar?as_yl ... as_sdt=0,5

https://scholar.google.ca/scholar?as_yl ... as_sdt=0,5
active members shape site content. if there is a problem, speak up!
use the report button to flag problematic post content to volunteer moderators' attention.
robbie
Family Elder
Posts: 1300
Joined: Thu Jan 27, 2005 3:00 pm
Location: Northern Ontario, Canada

Re: Erectile Dysfunction?

Post by robbie »

It's not zinc, beer, smoking or pot, it's the fact that the ms just happens to be inflaming and gradually destroying the myelin around that particular nerve that sends the signal to tell your dick to get hard. That's it
Had ms for 28 yrs,
8.5 EDSS
SPMS, 54 yrs old
Taking it day by day
Post Reply
  • Similar Topics
    Replies
    Views
    Last post

Return to “Daily Life”