Erectile Dysfunction?

A forum to talk about the general challenges of daily life with MS.

Erectile Dysfunction?

Postby SassyBoots » Sun Aug 11, 2013 8:13 am

Hi Everyone.

I don't know if I am posting in the right place, so if I'm not, then please accept my apologies.

I recently met a man I really like who has MS. He is a wonderful man and I feel really lucky that we got the chance to get together. Been about two months now.

We just started getting intimate a couple of weeks ago. The issue we are having is that he can obtain an erection during foreplay, but once it gets down to actual penetration and making love, he can't seem to maintain it. He's told me he's very heat sensitive, so when things "heat up" it takes alot out of him. He has had to make sure the window in his room is open, and that the ceiling fan above his bed is running to keep him cool, which is not a big deal for me.

The other night we were just playing around after him losing his erection again, and this time I performed fellatio, and even THAT didn't really help. He said he enjoyed it, but it didn't have the...."desired effect", lol.

We tried again last night, with pretty much the same effect. This time, I asked if it was me. He seemed really shocked that I would even ask. But if there are any other women on here that have gone through this experience, you know what it does to YOUR psyche, not to mention your partners.

I've never ever dealt with the issue of erectile dysfunction in a completely healthy partner, so aside from the standard remedies(take the pressure off the act, reassure, and communicate)I'm not sure how else to deal with it, or what will help. He does smoke, drinks alcohol, and right or wrong, smokes the occasional joint....both because he just likes pot, and because he says it does help with some of the discomfort from the disease.

He is currently on Copaxone injections for the MS, and has been for about two and a half, maybe three months.

I really really like this guy, and want to help him all I can to deal with this, not to mention to support and help him deal with the issues from the disease in general. He was diagnosed several years ago with recurring remitting ms, but says he never has had any serious issues from the disease until around February of this year. The attack he had then wound him up in the hospital.

He is struggling with the changes all of this has wrought, so right now he is mentally and physically fatigued as well.

I hope someone has had the same experiences and can help us learn how to work through this. All answers and suggestions would be very appreciated, including if someone can list side effects of Copaxone? I suggested he may want to look into that as well. As far as the drug goes, even I can see the difference its made for him, it seems to be working really well as far as effectiveness goes. I see a big difference in his mobility and fine motor control since he's been on it, even in the short period of time that I have known him.

Thanks!!!
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Re: Erectile Dysfunction?

Postby jimmylegs » Sun Aug 11, 2013 9:18 am

hi sassy, my focus is on the nutrition side of things. one of the key nutrients for ms and for general reproductive health is zinc. zinc is depleted by many things including cigarette smoking and alcohol consumption.

I was in a long term relationship with a 'healthy' (non-ms at least) picky eater who had issues with ED. we worked around it and it wasn't really an issue.

when I started working on nutrition so did he and although he was not measuring zinc status we knew from his diet and lifestyle that his status would likely be poor. after general work on nutrition including supplements that included zinc, his functionality improved. we had broken up by this time though, so, lucky someone else lol :)

i'm not surprised your partner was shocked to hear you ask if it was you.. *guys* feel inadequate and it can be a surprise to learn that a partner can start to take it on board and begin to feel somehow inadequate too (but I fully understand, been there done that)

I haven't heard anything about the potential influences/consequences of copaxone on zinc status.

anyway I've mentioned zinc to others for help in the bedroom, with good followup reports. interestingly oysters, a well-known aphrodisiac, are the single richest dietary source of zinc. om nom nom ;)
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Re: Erectile Dysfunction?

Postby SassyBoots » Sun Aug 11, 2013 9:23 am

Thank you!

I know he is taking a really good combination pack of vitamins and supplements, but not sure about the zinc content, but I will find out.

When we were just hanging out last night, he stated he is ready to try a lifestyle change(quitting smoking and laying off the alcohol at least a bit. He doesn't have issues with consumption of it, not by a long shot, but with it being summer there is always beer or wine in the fridge, lol).

He is allergic to fish, but not to seafood, so the oysters are an interesting idea. I'll mention it next time I see him.

:-D :-D :-D :-D
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Re: Erectile Dysfunction?

Postby jimmylegs » Sun Aug 11, 2013 11:53 am

if you can find out the brand of multi, a link or two might provide lots of useful online details.

I find that multis are generally designed to maintain health, but are not delivered in therapeutic amounts aimed at correcting deficiencies associated with illness. that's why testing is important. patients should know if a regular multi is having an effect, and if they are taking higher therapeutic doses, they need to know when and if they should stop.

great news re the lifestyle change, it can only help!

if his zinc status is poor it could be linked to reactions to various foods. this is a tough assertion to extract intact from research, but the evidence is there if in a roundabout way so far.
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Re: Erectile Dysfunction?

Postby Anonymoose » Sun Aug 11, 2013 5:59 pm

Trying to keep this not trashy but it is what it is...

Have you tried a certain type of ring for a certain male appendage? They trap the blood. I suggest putting it on before things reach desired psi...otherwise it can be quite a wrestling match. And don't leave it on too long or things might feel funny the next day. :ohno:

I second JL's recommendation for zinc. It's great for girls too. :D

Good luck!
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Re: Erectile Dysfunction?

Postby jimmylegs » Sun Aug 11, 2013 6:21 pm

PSI LOL ANON
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Re: Erectile Dysfunction?

Postby milesap » Mon Aug 12, 2013 10:10 am

Here is a suggestion: Some MS folks are saying that the combination of Viagra and Niacin reduces heat tolerance because of improved blood flow. So have him try it - if not you can always stop
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Re: Erectile Dysfunction?

Postby aredmosquito » Mon Aug 12, 2013 5:07 pm

I second Anonymoose. The rings do help. I recommend a nice stretchy silicone one.
Symptoms as far back as 2007
Diagnosed with RRMS March 2013
Started Rebif May 2013
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Re: Erectile Dysfunction?

Postby SassyBoots » Sat Aug 17, 2013 4:30 am

Hey guys!!

Thanks for the great suggestions. I never even thought of the ring....lol.....although I know they have been around forever. :-D

I'll see how things go going forward....hoping its going to get better, pretty sure it will. I know he won't be adverse to trying the ring idea, he's pretty open minded about that sort of stuff for "adult playtime" lol.

I always thought that Niacin CAUSED hot flashes????? Is it because the Viagra does something to counter act it? Interesting, I'll have to mention that too.

I'm seriously hoping for this "lifestyle change" he was talking about....lets hope he walks the walk. He is out camping in Saskatchewan with his buddy and the kids over the week last week and sounds like they partied it up pretty good. I know (from personal experience, lol)that too much alcohol can affect even a healthy man, as can the pot and the cigarettes, as far as ED goes. Compound that with the issues with MS, just makes it worse of course.

Here's hoping.

If anyone has any other suggestions or advice to add, I'd be so grateful to hear it....until then thanks and have a great weekend!!!!!

:razz: :razz: :razz:
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