Just diagnosed 6 weeks ago & I pretty much blurted to everyone I know. Well, that's exaggerating, but I told 4 people at work, 4 at church, a support group I'm in, and my whole family. And my hairdresser--but that was imperative, as I was losing function in my left hand & needed a carefree style.
Now I'm regretting being so open; although it hasn't come back to bite me yet, I feel like people look at me funny and I don't know what to say when they ask how I feel. I've pretty much settled on "I feel great...but my body is/isn't cooperating today."
On the other hand, I'm still in the middle of a flare (and in the throes of Tecfidera onboarding side effects) and when I'm tired/fatigued/dragging my foot and in pain, it SHOWS! I've fallen in a couple embarrassing situations and I had someone yesterday ask me if I was using drugs.
I'm grateful for their concern, but I don't always want to get into it. Especially as I'm hoping to get back into remission & be fine for a while again. Any advice on what to say & how to shut down questions? Who did you wish you had told or regret telling?