I would like to hear from others about how they cope with the losses and uncertainty related to this disease. I was dx two years ago with RR at 39. Completely out of the blue. ... She is suggesting that I try an anti-depressant for six months and try some counselling. ... I feel the same way about cognitive impairment - I could not, and would, not live with this.
I was dx nine years ago with RR at 39 too. Sucks, but my niece was just dx a few months ago at age 25 with 2 young kids - as hard as it has been for me at this age, I can't imagine what she is going through. But she's quite positive about it. Amazing. Fourth person in our family to get it, and my wife's family has it too - I'm worried for my kids and hope the "cure" comes in time to help them.
I resisted counseling for several years, but I finally decided to try after multiple doctors recommended the same therapist. It is amazing the difference it makes - I felt better after a few weeks and stopped taking the antidepressant.
For the brain fog and cognitive impairment, my neuro started me on Aricept and Namenda. Seems to have done the trick. Brain fog is gone and even my swiss-cheese memory is starting to be more reliable. Cognitive impairment is by far the scariest aspect of the disease for me.
I never really exercised my entire life, but finally started 18 months ago. It has made a tremendous difference and I highly recommend it. Couldn't do much at first, and progress has not always been consistent, but things continue to improve. I feel better after I work out too.
I just finished reading a book called "Tuesdays with Morrie" about a guy named Morrie Schwartz with ALS (Lou Gehrig's disease), and watched the videos that the library had on him. Really helped me get a handle on accepting having a critical illness and getting on with life. He says he cried every morning over his losses for a short while, and then got back to living. I had never thought of grieving like that.
I too think maybe I would feel better if I stopped visiting these MS web sites, but I do get something out of them and would hate to miss that.