I can't rem if I posted about this before, may have! - sorry, memory is sometimes a bit ropey. Periodically gets to me....and this is NOT a pity-party-post - I have a very good life - just could do with some constructive advice about this situation.
I have just had 2 weeks off work as hols and have hardly thought about MS at all, felt so good. Even got the gym, did garden, went for walks- I felt alive. It seems all I think about in work (in between working!) is how awful I feel fatigue/muscle pain/eyes/balance/pain. Don't get me wrong, I really love my job and co-workers and I am a worker-bee to the core. But really starting to question whether I should be working fulltime.
Here I am, nearly 35, MS doing ok finally, and I'm spending 2.5 hours a day commuting, working fulltime and recovering from work in the evenings and weekends. I have very little quality time for me or husband or friends. I feel like I'm always trying to hang on another week. That has been my choice so far, don't get me wrong.
It's the commute that gets to me the worst. We'd love to move but the area I live in is low-cost compared to the area we'd need to move to and it would move our mortgage into a mortgage that would need both of us working fulltime to pay it! As we all know, I can't guarantee I can do that longterm with MS.
Keep on going? Or perhaps do half-time?
The thing that's really making me think is a close friend has SPMS and has lost the ability to paint/walk far/ etc. I am wondering if that's ahead for me too, and if so do I want to spend my life working, or have a bit more quality time now.