i have a post under Tysabri and i just said this morning, i am going to print out my post and the responses and show it to my doctors. ThEY DO NOT HAVE A CLUE as to what we go through. there quick fix is always IV Steroids or prednisione. I am so frusterated with my doctors right now. I sent all of them an email last night saying just that, that none of them know what i am going through, yes they hear it, but they have not a clue. My Neuro pretty much toold me i am nuts for wanting to try Ty, even though my Crohn's doc wants me to. that i am better off taking 2 different drugs that wew have NO CLUE of the interactions, side effects.... nothing.
sometimes they make all this much harder, not easier. Ii tiold my neuro yesterday " hey, you are my doctor here, we are supposed to be on the same side here" it does not always feel that way.
thanks for the rant !!!!
I needed that
it is a choice !