do you think?

A forum to talk about the general challenges of daily life with MS.

do you think?

Postby robbie » Tue Jun 19, 2007 12:41 pm

Do you think doctors and neurologists ever read some of the posts on this site? Could they benifit from all the results that people talk about? could they learn something from all your ideas on why and how? Where do all the ideas that they concentrate on come from? Maybe the cure for ms will come from here..
Had ms for 24 years now.
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Postby REDHAIRANDTEMPER » Tue Jun 19, 2007 2:01 pm

HMM good the past i have thought of that they look on they know how we feel about this, do they understand our frustration at would be nice to think there is one or two out there who do come on here and read our stuff and try and learn from it...just my thoughts on it

waiting for answers
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Postby sammy67 » Wed Jun 20, 2007 12:14 pm

i have a post under Tysabri and i just said this morning, i am going to print out my post and the responses and show it to my doctors. ThEY DO NOT HAVE A CLUE as to what we go through. there quick fix is always IV Steroids or prednisione. I am so frusterated with my doctors right now. I sent all of them an email last night saying just that, that none of them know what i am going through, yes they hear it, but they have not a clue. My Neuro pretty much toold me i am nuts for wanting to try Ty, even though my Crohn's doc wants me to. that i am better off taking 2 different drugs that wew have NO CLUE of the interactions, side effects.... nothing.
sometimes they make all this much harder, not easier. Ii tiold my neuro yesterday " hey, you are my doctor here, we are supposed to be on the same side here" it does not always feel that way.

thanks for the rant !!!!
I needed that
Be Happy,
it is a choice !
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