hey, found this interesting post on another forum:
Hi, I have been frantically searching every msg. board on the internet hoping to find an answer. I also have tinnitus which started almost 2 months ago and has gone on non stop since. My other symptoms started as burning and tingling in my handsand feet then it progressed to my whole body. Right before the tinnitus started, my face and head started going numb and now and then my right arm does too. I have been going round and round with several doctors. They have done lots of testing, they started off saying they thought it was MS. They did lots of different blood
work, on Thursday evening a Neurologist from Ohio State University Hospital called and said that she thinks that she may have found my problem. My Iron levels and Ferritin levels are EXTREMELY low and also my B-12 level is at 272. Which is withing range (200-900)but she said that when a person has neurological symptoms and their levels are below 400 she treats them with B-12 shots, she said that the vitamin pills do not take care of the problem. She is doing a prescription for me and on Monday I will be starting them everyday for the first 2 weeks and then depending on how the levels go up they will decide the next course of treatment. I have been told by several different people on here that a B-12 problem can cause all types of terrible symptoms so I am praying this will work for me.
As for you...maybe since your levels are below 400 this could be some of your problem if not all. I know it sounds like to easy of a cure but I guess you we won't know til we try. All I know is to tell you to keep trying, keep pushing because a lot of doctor think it is easier to try and mask the symptoms by prescribing Xanax and that type thing instead of getting to the bottom of it. Three doctors that I went to insisted that it was all in my head, it was nerves, anxiety and I just shook my head and told them in no uncertain terms that it was not and that I was NOT taking those meds. Just as you said I am not a nervous stressed person and I just refused to be put off. I felt bad sometimes that I might have came off as a pain in the butt but hey no one is going to help us but US!!! Keep at it! My prayers are with you!!