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PostPosted: Tue Sep 15, 2009 2:11 am 
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Location: Ireland
Donna
I could have written your blog (well, not as well as you!) when I was working. I know it can become the primary goal in your life to keep going 100%, and I can understand it when there is just you to pay the bills, but could you even consider taking one extra day in month unpaid off?
I got quite low in spirits when I was working like this because it does eat into you over time - not having any energy left over for anything that you enjoy. Over time I started to question just why was I doing this to myself? I am much poorer now in actual terms but so much richer in spirit. It's like I'm slowly coming alive again.

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Concussus Resurgo
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RR-MS dx 1998 and Coeliac dx 2003
~~~~~~~~~~~~~~~
Copaxone, Cymbalta. EPO, Fish Oils, Vitamin D3 2000 IU daily, Cal/Mag/Zinc, Multivitamin/mineral, Co-Enzyme Q10, Probiotics, Milk Thistle.


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PostPosted: Wed Sep 16, 2009 6:52 pm 
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Joined: Fri Jun 05, 2009 3:00 pm
Posts: 75
Location: US
WW,

I'm looking at various options but am hesitant to get official "accomodation" from Human Resources at work based on the advice of many. It would be a point of no return with people I do not trust embedded in my life (HR). However, I do often ponder what the point is. Exhaustively hauling myself through each day to make enough money to pay the mortgage on a structure where I collapse in my free time by myself.

Am hoping to create some midway options such as what you suggested -- although half time work would likely be more realistic. You said you were poorer now but richer in spirit. In my early years, I lived very non-traditionally and off the beaten path (running water optional). So, I do know how to scale down and do understand that simplicity in life can bring riches to the spirit. I'm just terrified about doing something that would leave me without insurance -- due to MS and the fact that my brain tumor that was removed last year was the type that can grow back (low probability in my case).

Today I'm grateful for the flexibility in my job that allowed me to go home midday and collapse. I am luckier than many in that regard.

Donna


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PostPosted: Thu Sep 17, 2009 2:10 pm 
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Location: Ireland
Quote:
I'm just terrified about doing something that would leave me without insurance -- due to MS and the fact that my brain tumor that was removed last year was the type that can grow back (low probability in my case).

Donna I'm sorry - I forget that I am talking to people who have to worry about paying their health insurance. You're in the US? In Ireland we have basic medical healthcare (sometimes with sinfully long waiting periods for necessary operations though) for everyone, and then private health insurance that you purchase if you want more time at appointments or much shorter waiting times. The whole dynamic of life is so dramatically different though if you need to work to access basic healthcare.

I didn't mean to sound like I was neatly packaging up your options for you....I just felt for you because I know what it feels like to push yourself that hard, day after day. It's incredibly tough.

_________________
~~~~~~~~~~~~~~~
Concussus Resurgo
~~~~~~~~~~~~~~~
RR-MS dx 1998 and Coeliac dx 2003
~~~~~~~~~~~~~~~
Copaxone, Cymbalta. EPO, Fish Oils, Vitamin D3 2000 IU daily, Cal/Mag/Zinc, Multivitamin/mineral, Co-Enzyme Q10, Probiotics, Milk Thistle.


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 Post subject:
PostPosted: Mon Sep 28, 2009 1:26 pm 
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Joined: Fri Feb 13, 2009 4:00 pm
Posts: 486
Location: Turkey Creek, Florida
Time for me to VENT and give thanks.....
Attitude:
I am so thankful for the job I have in this horrible economy. One that pays decent with good benefits
Vent:
I cant stand these POS people that I work with that take this job for granted. People who aleays push the envelope by constantly calling in sick or taking time off, Screwing their partners. Peoplee who dont realize or care what they have. People who dont realize how good they have it, to have a job and have their health. What I am saying is, it sucks when you have to struggle and push yourself to get thru the day or to even show up for work. Then you have these POS who just call in or take time off cause they just dont "feel" like comming in. It boils down to piss poor supervisors and bad management. I am trying to maintain a positive attitude, but sometimes it's difficult.
Vent turned off.....Sorry :evil:


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PostPosted: Mon Sep 28, 2009 2:00 pm 
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Location: Northern Ontario, Canada
Quote:
to have a job and have their health.

they have no idea bubba, you just want to slap people like that, i have said that if i ever got healthy i would be a much better person having seen and lived with what ms can do.People that bring hardship on themselves have no idea what it's like to have it taken from them through no fault of their own.

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Had ms for over 19 years now.


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PostPosted: Mon Sep 28, 2009 3:10 pm 
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You got that right!
Then I have my wife at home, who is one of the people you describe, she brings hardships on herself. Always drama over the smallest thing.
Between work and home, I need to get away to a mexican beach with a case of tequellia (sp) :lol:


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PostPosted: Mon Sep 28, 2009 3:12 pm 
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Location: Turkey Creek, Florida
Also, I wanted to say.....

Thank God for this site and the fine, outstanding people who are members here! If it weren't for TIMS, I'd be in a nut house...


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PostPosted: Mon Sep 28, 2009 5:36 pm 
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Location: suburb of Chicago, IL USA
Bubba, first of all I want to agree with your vent but not just in the work- place. People in general who don't appreciate their good health drive me crazy. If they had any idea the fear that we deal with daily over our health, maybe they'd stop bitching and complaining about stupid shit. Sorry, I'm a little feisty today.

Ok, now on to gratitude. I am grateful that for the first time since i joined this site there is a reason for Robbie to feel cautiously optimistic. Robbie, I don't think that you realize how much your posts affect everyone on TIMS. Your posts used to scare me when I first joined but now they help keep me grounded. I'm still optimistic but your posts really cut through the bullshit. Your video made me cry from happiness. I know it's just a start but it's a great start. I hope it just gets better because we're all pulling for you.

One more thing that I am grateful for. I finally got up the nerve to join a dating site even though I am scared shitless. Everyone please send me your good vibes cause I need them all.


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PostPosted: Mon Sep 28, 2009 5:53 pm 
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..


Last edited by Lyon on Thu Jun 23, 2011 6:06 pm, edited 1 time in total.

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PostPosted: Tue Sep 29, 2009 11:56 am 
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Believe me Bob, I am the most cautious person you could know. Thanks for the good vibes.


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PostPosted: Tue Sep 29, 2009 1:15 pm 
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scoobyjude wrote:
Believe me Bob, I am the most cautious person you could know. Thanks for the good vibes.


Bob, you giving out good vibes? Please send me some, I feel left out...LOL :lol:
Seriously.... Having the job I have, I get to see alot that never makes the newspapers. My advice is to go with your gut instinct, it's usually right. I see people "change" instantly. Dating is a good thing,it gives you something to look forward to. I reckon, that because of my job and experiences, I dont put alot of trust in people. Go For it Scooby!

Not real sure if that made any sense, but I understand it.


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PostPosted: Tue Sep 29, 2009 1:26 pm 
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..


Last edited by Lyon on Thu Jun 23, 2011 6:06 pm, edited 1 time in total.

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PostPosted: Tue Sep 29, 2009 5:12 pm 
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Lyon wrote:
scoobyjude wrote:
One more thing that I am grateful for. I finally got up the nerve to join a dating site even though I am scared shitless. Everyone please send me your good vibes cause I need them all.
Awesome Judie! You've got good vibes coming from me, but just be careful about who you go on dates with and leave information about the person before you go.
Bob


Be real wary of any guys who list among their interests deep thinking while sitting on the can.


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PostPosted: Tue Sep 29, 2009 5:35 pm 
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..


Last edited by Lyon on Thu Jun 23, 2011 6:07 pm, edited 1 time in total.

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PostPosted: Tue Sep 29, 2009 7:32 pm 
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patientx wrote:
be real wary of any guys who list among their interests deep thinking while sitting on the can.


Sooo.... where are we supposed to think at? That is the preffered spot! 8O


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