***Apparently my family (parents/siblings) thinks MS is something like the flu or a bad kidney infection. They were lovingly by my side in January when everything went down and I got the dx but since mid-Feb., the subject hasn't come up. I avoid mentioning it because it just sounds whiny but I would like to talk about it sometimes with them. It's as if nothing in the family has changed...but in my life, it seems EVERYTHING has changed. I know they care about me so maybe they're just waiting for me to bring it up.
***Will I reach a point when ALL my thoughts aren't about this disease? I'm sure it's perfectly normal to be consumed with something like this for a period of time, it's been 4 months since my dx so I'm thinking, maybe after 6 months or a year, it will become just another part of who I am and I won't dwell on it so much.
***A little consistency would be nice with the Rebif side effects. I'm on week 12 and some days I find the "sweet spot", no sting, no blood and just a small site reaction. Other days I may get a dime-sized spot of dark blood, horrible sting and a large,painful lump that lasts 5-7 days. This mostly occurs when I inject my thighs. Am I maybe getting muscle instead of fat? Also, most days I have hardly any of the flu-like symptoms as long as I take ibuprofin, just a little fatigue but I've had a few injections that made me terribly sick the next morning. I'm Just wondering what the difference is. It's like a coin toss, will this be good shot day or bad shot day.
***One of my first concerns when I found out I have MS (didn't know anything about it), was "Does it affect lifespan?" I read that on average, a person with MS may have a very slightly shorter lifespan (I don't remember the percentage). While that's good to know, it occurred to me that I'm sleeping several more hours per week than I used to due to the MS and/or meds. Add that up over the next 20 years or so and it may as well be a MUCH shorter lifespan.