This Is MS Multiple Sclerosis Community: Knowledge & Support

thx lots ww, i can think of a few other ppl i know who could potentially benefit from this test. will look into it and also will pass it on.

First, I know Ashton Embry because we correspond by emails. He is an incredible person who really worked hard to research MS on a macro level. His son Matt is doing fine on this diet.

I have incorporated part of this diet but I do not follow any diet strictly. Why? Because strict diets can induce stress, which works against MS. It is important to eat right but not to go crazy.

I supplement my diet by taking 4,000 IUs od vitamin D a day, 1,200 of Calicum, 2 g of Omega-3 fish oils, 1 g slow release vitamin C all right after dinner.

I generally eat white meats, fish with vegetables and salads. I drink water almost exclusively (no milk). I do not eat breakfast but I have two cups of coffee in the morning to induce a bowel movement.

Back to the diet. It can help some but not all patients. It is worth reading what Ashton Embry has posted on that site but do not think that diets are the answer to curing MS. They can help but don't think it is enough, especially if you continue to progress.

I will never forget what my first neurologist told me about the Swank diet. He said you read about the successes but you do not see all the failures.

You need to keep some perspective with MS. It is tempting to think that a diet is enough but it is not. It can help a lot but it may not be enough.

beyondms

It's one kick of the can in the right direction but I believe it is case sensitive and needs to exclusive to each individuals, intolerances ,allergies and needs. My 2 cents on diet. Supplements are a little easier to follow. We are on many. Hello and glad to meet you

_________________
John was diagnosed Jan 2005. On lipitor 20mg .On Copaxone since July 4,2005. Vitamin D3 2000iu-4000iu (depending on sunshine months)June 10 2005(RX::Dr. O'Connor) Omega 3 as well Turmeric since April 2005. Q10 60mg. 1500mg liquid Glucosamine Nov 2005.

Ok, i'm arriving late to this discussion, but it's very pertinent to me.

I'm familiar with the Ashton Embry article/webiste, and in fact corresponded with him for a bit. Based on his article, i took the ELIZA hidden food allergy test; it indicated 5 foods that i had severe allergies too, including most especially, eggs (which i love),but based on those results i largely eliminated these foods from my diet. For 10 years i deprived myself of these foods.

Did it improve my MS? Really impossible to tell, as i've always had so-called benign MS; i average about 1 relapse every 4 to 5 years, and it's mostly been sensory with some weakness in my right leg.

So a few years ago i wanted to retake the test, my thinking being that if the 2nd test showed the exact same food allergies, there might be something to this after all. The 2nd test was a RAST test; i'm really not clear on the difference between that and ELIZA, hopefully it's not signficiant, but anyway, the 2nd test showed i tested negative on all foods.

Coincidental to all of this, i was on an online dating service and met a man who turned out to be a neurologist. We've been dating for a bout 3 months. I showed him the Embry article and my test resulta and asked him what he made of it. For what it's worth, he didn't place a lot of credence int he accuracy of these allergy tests and also doubted that a mere food allergy, particularly one exhibiting no outward symptoms, would be able to penetrate the blood/brain barrier.

So feeling a little scared, i had some hard-boiled eggs in a spinach salad last night. I can't tell you how good they tasted. I guess my inclination at this point is to reintrodce these 'forbidden foods' back into my diet and see if i get a relapse. Cus does it make sense to write off certain foods FOR A LIFETIME with NO CLEAR evidence it's making any difference???

By the by, nutritionally, i eat very well. Generally a medittarean-style diet low in meat, especially red meat. I cook with canola or olive oil only. Lots of colorful fruits/veggies. I get most of my protein from poultry, legumes and nuts. I do take various supplements including calcium/mag, Vit. D, ALA, turmeric, B complex, fish oil, Vit. E. My weight is normal and while my job is very sedentary, i work out at hopsital gym with BF 1x a week and on the weekends we walk. Will be much more active in the summer with mowing my lawn and kayaking.

Oh yeah, forgot to mention about the diet, i also eat a fair amount of fish, mainly canned tuna and salmon, and not much dairy in the diet, never milk, a little cheese and some yogurt, that's it.

i have tried to follow the best of the best food regime but i have never been able to follow them because i couldn't controlled the my tongue. i always feel like having some chocolates or pizzas. i don't know what to do. i must send you a picture of mine. oops!! i ahve to upload my picture over an image hosting site first. do you guys do this, i'll advise you try free image hosting. i'm fat but i'm never motivated to do something. give me some bad comments so that i react.

[/u]

Hiya everyone.

I followed the BBD for the first 6 months of the year, I stuck to it really well but found it so so hard I came off it. A couple of things I've stuck to, well one which is that I have rice milk. Also I don't really have beans.

Anyway. I looked back over my 'ms diary' that I keep the other day. Well, wouldn't you know! Last year - pre BBD and also pre Rebif - I had 3 relapses. The first 6 months of this year - on the BBD and started Rebif 22 - I had ZERO relapses. The second half of the year - NOT on BDD and on Rebif 44 - THREE relapses!!

This can't be a co-incidence. Therefore, starting Monday I am back on the BBD! (Though I will have xmas eve, day and boxing day off so as not to make more work for my Mum)

Anyway, just wanted to share as it looks like it worked for me.

Take care, thanks for reading. Laura xx

Hi Laura

Thanks for the info and well done on going back on the diet.


I am a swank dieter and I don't do dairy either. It is hard work but worth it!

Happy Christmas

J

Has anyone had a mannitol-lactulose intestinal permeability test performed?

The Best Bet Diet pages speak of this test as a way to check Intestinal Permeability; which appears to be a major factor of its basis. I note the page also talks of "VEGA Testing", which can be found on the quack watch website.

what? no one?

i don't know cure. i'm trying to find the same things. i looked up the elisa test co and they are on there too. make you wonder..about the test that is..i believe ashton and his group..

i haven't but i recently discovered interesting links between zinc and intestinal permeability. at my last bloodwork i was zinc deficient - working on that now.

I did an ELISA food intolerance test to my wife (RRMS since Mars 2007) and found what appears very common in MSers and mentioned in www.MS-diet.org:
intolerance to milk, some meats, all legumes, wheat etc
She follows restricted BBD since last December and we found with the saliva test (if you google it it's very easy to do it) she may also suffer from leaky gut/candida.
Except Zinc, probiotics etc, vitamin K helps a lot in leaky gut syndrome.

i did the ELISA test, and from memory, came out "clear"

I recall that, at least in the early 1990s, the best test for HIV was the ELISA test. I think the name (acronym) refers to a testing method, rather than being disease- or even test-subject-specific. I could be wrong there.

I would certainly want to have some testing done before doing a diet as restrictive as the Best Bet Diet...but that's me.