Questions about FTY720

A board to discuss future MS therapies in early stage (Phase I or II) trials.

Postby CureOrBust » Sat Aug 05, 2006 6:54 pm

NHE, i read the link you gave, and I know punctuation makes all the difference, but the first time i read it...
...occasionally irreversible; deaths reported...

It was on a page off the main page. regarding kava, and kidney dammage i think.

gibbledygook wrote:I can't say I've noticed any changes at all!!

Yeah, i finnished mine as well, and i cant say i noticed anything either. However, from what i have read, FTY720 is suppose to reduce relapses, not heal existing damage. Also, the implication is that they have taken the source herb and altered it to make it many times more effective.

Nonetheless, i will order another batch, and take it when i think i am about to have a relapse. I am "lucky" in that my relapses clearer follow a cold/flu, so i know when they are about to happen.
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Postby CureOrBust » Mon Aug 11, 2008 3:00 am

OK, I missed this thread. I only found out about the FTY720 vs Avonex trial today. The research nurse running the trial for my neuro called me today and said she was starting a new FTY720 trial. After a bit of cross talk I realised that they were currently running the above trial (FTY720 vs Avonex), and were about to start the FTY720 vs Placebo trial. Strange because about a year or two ago I spoke to another neuro who was about to start the FTY720 vs Placebo trial (I bowed out as I had a relapse, and it was part of the exclusion criteria).

Now, the further interesting part of this Avonex vs FTY720 trial is that EVERYONE is injecting something. Those actually on the FTY720 arm of the trial, are given saline to inject!

Is anyone here actually on this FTY720 vs Avonex trial?
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