It's now been over a week since I received my first Botox bladder injection. The treatment was performed at a local outpatient surgery center, I was fully anesthetized and was home again in a couple of hours.
I now am able to hold much more fluid in my bladder (more than twice the pre-Botox amount), and have yet to have an "accident". It took about 4 days after the injection to experience this benefit.
The downside is I now have to self-cath five times in a 24-hr period (4 times during the day, and once at night). I was doing this 3 times daily before the procedure so this is not a big deal for me. But, now I can expect to seldom have an accident, and I now sleep through the night (except for once a night when I set an alarm to self-cath), and my equilibrium is now much better as I stopped taking tolterodine 4 days after the procedure.
I used to be able to initiate some urine flow by applying pressure to my lower abdomen, now this often doesn't work.
So, there are trade-offs. I now have to plan my day around when I need to self-cath (about once every 4.5 hrs). But, given that I am now less tied to the bathroom, and my balance equilibrium is better, this was a good choice for me. I can expect this benefit to last about 8 months or so before I'll need another injection.
Unfortunately, I am now very dependent on having a ready supply of catheters on hand. If I run out, for whatever reason, I'd need to visit a hospital emergency room or critical care facility to have my bladder emptied.
Before the injection, I needed to use the bathroom at least once an hour, if not more, and nights were often pretty sleepless for me and my spouse.
Last edited by questor
on Fri Oct 11, 2013 7:55 am, edited 1 time in total.
CCSVI Procedure 9/16/2009 at Stanford
Stent in left and right IJVs
Former Ampyra User
Regular Botox Bladder Injections
300mg d-Biotin / day