Helpful hints On Tysabri

A board to discuss future MS therapies in early stage (Phase I or II) trials.

Helpful hints On Tysabri

Postby mpalla » Wed Jan 15, 2014 11:01 pm

Hi! I once again am overwhelmed with info on Tysabri. Anyone got any helpful hints....maybe maalox, or eat bowl of berries morning of?! Lol
I am JC negative and have suffered with migraines for years.
Thanks! :)
Diagnosed 2-13-13. RRMS.
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Re: Helpful hints On Tysabri

Postby centenarian100 » Wed Feb 26, 2014 3:50 pm

Sometimes tysabri can cause headaches, but I don't think maalox or a bowl of berries will prevent this :)

best of luck
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Re: Helpful hints On Tysabri

Postby mpalla » Sat Mar 01, 2014 3:52 am

I had my second infusion and a week later all joints and limbs hurt terribly. Woke up in tears felt like my bones were breaking. 2 days later much better. Ever experience this?!
Diagnosed 2-13-13. RRMS.
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Re: Helpful hints On Tysabri

Postby centenarian100 » Mon Apr 28, 2014 10:13 pm

Tysabri has been reported to worsen other system autoimmune diseases, presumably by increasing the systemic leukocytes. Do you have another other conditions like lupus or rheumatoid arthritis?
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Re: Helpful hints On Tysabri

Postby mpalla » Tue Apr 29, 2014 8:17 am

No I do not. My sister has psoriatic arthritis....I have slight arthritis in my knees. This time infusion #4 was okay. No negative bone pain out the normal hit by a bus feeling this time.
Diagnosed 2-13-13. RRMS.
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