Question and Info

A board to discuss future MS therapies in early stage (Phase I or II) trials.

Question and Info

Postby hbriese07 » Wed Nov 09, 2016 11:06 am

Hello,

I was diagnosed with relapsing/remitting MS in April of 2014. I began Tecfidera mid May of that year. This last summer has been rough...numbness, I fell, etc. Had an MRI and found that I had new lesions on my thoracic and cervical spine. I met with a n MS Specialist and after much discussion, labs, etc it was decided that I would start Tysabri infusions.

My first infusion is set for Tuesday Nov 15th and needless to say I am nervous. I just met with my family practice Dr, who is very knowledgeable about MS. He had made the comment that I should make sure my family knows that I will not be in charge of Thanksgiving (this is without me even bringing up that we were potentially hosting), I shouldn't be the one in charge of schlepping a turkey around, making ten pounds of potatoes, etc. He said that I could potentially feel wiped out for a while.

I am nervous...nervous for what I am going to feel like after, the side effects, and all that accompany starting new meds. The Tecfidera made me extremely sick for a good 2 months.

If anyone out there has had experience with Tysabri infusions and can shed some insight I would greatly appreciate it!!

Thank you,
Heather
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Re: Question and Info

Postby euphoniaa » Sat Nov 12, 2016 9:11 am

hbriese07 wrote:Hello,

If anyone out there has had experience with Tysabri infusions and can shed some insight I would greatly appreciate it!!

Thank you,
Heather

Hi Heather, and welcome!

I just noticed you had no replies to your question yet, even though there are many people taking Tysabri. I suspect it's because the subject heading isn't specific enough -- and also that it's in the "Drug Pipeline" forum. I know it's a bit tricky to figure out how the forum works at first, so I would suggest that you explore the Tysabri subforum here: tysabri-antegren-or-natalizumab-f11/

If you don't find enough info already posted in those threads, you should ask your question again there, with a subject heading like, "Tysabri question" in order to get more responses. Good luck with your med decision and please feel free to ask as many questions as you want. :)
Dx'd with MS & HNPP (hereditary peripheral neuropathy) 7/03 but must have had MS for 30 yrs before that. I've never taken meds for MS except 1 yr experiment on LDN. (I found diet, exercise, sleep, humor, music help me the most.)
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