I was diagnosed with relapsing/remitting MS in April of 2014. I began Tecfidera mid May of that year. This last summer has been rough...numbness, I fell, etc. Had an MRI and found that I had new lesions on my thoracic and cervical spine. I met with a n MS Specialist and after much discussion, labs, etc it was decided that I would start Tysabri infusions.
My first infusion is set for Tuesday Nov 15th and needless to say I am nervous. I just met with my family practice Dr, who is very knowledgeable about MS. He had made the comment that I should make sure my family knows that I will not be in charge of Thanksgiving (this is without me even bringing up that we were potentially hosting), I shouldn't be the one in charge of schlepping a turkey around, making ten pounds of potatoes, etc. He said that I could potentially feel wiped out for a while.
I am nervous...nervous for what I am going to feel like after, the side effects, and all that accompany starting new meds. The Tecfidera made me extremely sick for a good 2 months.
If anyone out there has had experience with Tysabri infusions and can shed some insight I would greatly appreciate it!!