I refused to participate in a drug trial..

A board to discuss future MS therapies in early stage (Phase I or II) trials.

I refused to participate in a drug trial..

Postby susannah » Sat Dec 27, 2003 6:47 pm

Hi all! My neuro asked me if i would participate in a drug trial. I said no because it would have invoved me having to have 11 mri's in a 12 month period. I can't handle mri's i get very claustrophobic, even with sedatives i still hate them. Am i being selfish by refusing to participate, when i could be advancing research on ms? Susannah
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Postby mswp » Sat Jan 31, 2004 7:00 pm

I'll have your spot! :)

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oh susannah! no worries!

Postby VirtuallyFine » Sun Feb 29, 2004 7:45 pm

guilt is such a non-constructive emotion...and you need all the good emotions you can stir up. Do not worry about not being able to participate - we understand. I actually enjoy the MRIs - I use them as meditation time, to visualize healing, and reinforce my thoughts that I am trying to help myself and others. I am TERRIFIED of many things - and I do not let people make me feel bad about them (well, most of the time)...but just know that someday there will be something that you will be able to do to help...and let me know when that it...because I want to be the first to thankyou.

Love & Peace. :D
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Postby Aaron » Fri Jan 28, 2005 1:16 pm

hi, don't feel bad about not participating - they'll find others.
a little trick to getting thru the MRI's that I use is to keep my eyes closed even before I'm in the tube. That way you don't get that clausterphobic feeling.

Just a thought.

Keep smiling!

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Postby OddDuck » Fri Jan 28, 2005 1:30 pm

Yes, I have them cover my eyes with a rag that I can't touch, of course, BEFORE I slide into the MRI machine. Then even if I open my eyes at all, I still can't see a thing. Works like a charm!

But no, don't feel bad. I backed out of a clinical trial, also, because I decided to try something else, and I felt bad at first, too. There will be other opportunities to help the "MS cause" presented to you in many ways.

The MS Walk and other charitable things are just one example.

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