I have been on this trial for FTY720 now for 6 months. I a sure I am on the placebo. I need to make a decision now: do I stay on the study to please the investigators i.e. be the control group and just behave or, ask to get onto another study (perhaps cladribine or tovaxin or campath) before things get worse?
I know that one can always cop out of a study. I am not sure that the grass IS greener elsewhere.... but at least, I could try to get a real drug and not a placebo.
I would really appreciate your feedback. I feel like I must make this decision soon. I am slowly getting worse and it is not relapses. Maybe I am now of the secondary progressive type. Maybe this study drug is not even for me after all.....
Thank you... Carole