This Is MS Multiple Sclerosis Community: Knowledge & Support

Hi Everybody,

I had my sign up appointment today. My procurement and baseline visit will be December 29th. My doctor explained everything quite well. One thing I was not aware of is, if I do get the placebo, and things start to get bad with the MS, I can be treated with steroids or even have other treatment if necessary and stay in the trial. I would not want to do that, but it is an option.

I'll be giving lots of blood and having other tests next time. If I have enough of the MRTC's I'll be in.

Keep your fingers crossed for me! I'm an official Guinea pig now. Although I have to say that my doctor and his nurses take exceptionally good care of the patients, both in the trials and the regular patients. I'm very lucky.

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Take care, Ewizabeth Previously Avonex, Rebif & Copaxone RRMS ~Tysabri, 31 infusions, ended 9/09. Starting Copaxone 12/09, waiting for Cladribine to be approved in 2010.

I do hope you get accepted into the trial Ewizabeth! I went for my first screening visit Nov 14. I still haven't received the phone call telling me if MRTC's where found in my blood. I always thought of myself as a patient person...until now. I'll keep everyone updated once I find out if I was accepted for this clinical trial.

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Yes, do let us know when you find out Flipflopper. I don't know how long it takes for them to test for the MRTC's... I'll have the tests late December, and we'll be on vacation Jan 14-21 so they won't be able to do anything with me during that time anyway. It is a fairly demanding trial, but I think it will be well worth it!

I am technically accepted, but I do need to have enough of the MRTC's of course.

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Take care, Ewizabeth Previously Avonex, Rebif & Copaxone RRMS ~Tysabri, 31 infusions, ended 9/09. Starting Copaxone 12/09, waiting for Cladribine to be approved in 2010.

Thanks Bob,

One other thing he mentioned. There is the requirement that I be off steroids 60 days before the trial. He said that in the trial there should be no steroid use of any kind, including topical steroid creams, and steroid-containing inhalers. I use Nasonex, a steroid inhaler, so today was my last day for that as well as the Copaxone. I might need to start taking a daily antihistamine for my allergies while in this trial to keep my allergies from giving me headaches.

This trial sounds so good, really good. I hope there are good results as there have been before. This could be a promising treatment for those with Type I or Juvenile Diabetes too. That is a terrible illness that often affects children. It will be great if this works for that as well.

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Take care, Ewizabeth Previously Avonex, Rebif & Copaxone RRMS ~Tysabri, 31 infusions, ended 9/09. Starting Copaxone 12/09, waiting for Cladribine to be approved in 2010.

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Good luck guys...I am very happy for you. Thank you for posting your experiences.
NN

It's ok Bob. I can make do with the antihistamines. It isn't quite as good as the inhaler but it does the job. Not to worry! I'm tough and I'll manage. I just thought I should mention it in case the other doctors didn't emphasize it too much.

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Take care, Ewizabeth Previously Avonex, Rebif & Copaxone RRMS ~Tysabri, 31 infusions, ended 9/09. Starting Copaxone 12/09, waiting for Cladribine to be approved in 2010.

Thank you sh8un. I thought it might be good to post about it to let others know a few of the details of what might be up and coming treatments.

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Take care, Ewizabeth Previously Avonex, Rebif & Copaxone RRMS ~Tysabri, 31 infusions, ended 9/09. Starting Copaxone 12/09, waiting for Cladribine to be approved in 2010.

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That would be really nice if it did! I could get another cat!!

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Take care, Ewizabeth Previously Avonex, Rebif & Copaxone RRMS ~Tysabri, 31 infusions, ended 9/09. Starting Copaxone 12/09, waiting for Cladribine to be approved in 2010.

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I love cats! My sister has several, my brother has two. We always had one or two. My baby Sweet Pea, my elderly kitty passed away last summer, had to have her put to sleep. She was sick and frail and had dementia and pain... the poor poor baby. Anyway, I wanted to get another one soon after she was gone.

Well, my allergies were so much better when she was gone, I could breathe at night. Same with my husband, he wasn't coughing and sneezing as much. So, we probably won't get another cat. But when I go see my siblings, I hold their cats the whole time... soon they'll probably be to the point of hiding when they see me coming. My eyes burn and tear, and my nose gets stuffy, but it's worth it once in awhile.

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Take care, Ewizabeth Previously Avonex, Rebif & Copaxone RRMS ~Tysabri, 31 infusions, ended 9/09. Starting Copaxone 12/09, waiting for Cladribine to be approved in 2010.

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I’m a cat lover! But, I don’t think I like cats the same way you do Lyon




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It takes about two weeks so I should know soon. If I am accepted, I will keep you all informed about my experience with this clinical trial.