Thanks for your words.
Ok, so, i did well for the first three weeks (as I describe in my previous post). Fourth and Fifth week I found myself still very able to walk, but insomnia started to kick in, and so did brain fog.
It was refreshing to be in mid-summer and be able to walk and stay up late! However, I found that for the 4th and 5th week my mind became mush. I am involved in several major projects that demand excellent executive functioning and I could not motivate myself to act on anything that needed thought.
Maybe this is unique to me because many of my MS lesions are on my brain, and very few on my spine, so it makes some sense that a "potassium channel blocker" is a whole body experience and my brain was having, after 3 physically healthy weeks, a bad mental reaction. It felt like, you know, if you ever drank or smoke too much and you are sitting in a circle with friends partying and no one wants to move to let the cat in, or put out the fire, or even reach across the hallway and get the potatoe chips.... though we are all thinking of it (this is a memory from over 25 years ago I think!)
I do recall, and must confirm this with my neuro, that when he and I first discussed ampyra I got the impression he thought this would be a "take as needed" med. When the pharmacy finally connected with me the pharmacist said he was surprised I was told that and instead the pharmacist told me I should take it every 12 hours and that it had to gather in my system before I'd really see results.
After my 2 wks of brain mush, thankfully found myself describing this to my little sister, and realized that I wasn't getting better, so didn't take med that night, nor next morning. Within 18 hours my brain started to clear again, which makes me confused about how best to take this.
Just sharing my experience. Really looking forward to Aug.